Living with NeurofibromatosisThis section is a place to share stories about Living with Neurofibromatosis Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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To quickly access health information from your website's browser, download neurofibromotasis friends, me and my father have the neurofibro .we are used to this. people look at us very disgust and they do not talk properly. first i was shy of this as this was on my face,arms,chest and back. On face i had undergone minor surgery to get it removed, it has been removed. My father has also the same thing and at same places,though he had removed only two or three from back that to near spine. it is really painfull while doing shave . It has effected me in my personal life education and service area but i have come to terms to this. Whenever asked for what this is on your face i do not shy off i say that what it is.Why to feel shy when u have to live with this forever atleast god forbidwe do not have any dangerous or risk disease. Live life heads high at leset your fit Comments
April 2008
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