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Living with Neurofibromatosis

This section is a place to share stories about Living with Neurofibromatosis

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April 2008

  • Acoustic Neuroma - by Fiona - (Wed, Apr 23 2008)
    It all started when I was about 37 when I started going to my doctor with a sensation of something deep inside my ear canal. Eventually I was referred to an auditory clinic where I had all sorts of balance tests (I wasn’t feeling dizzy or losing my balance at this stage). [more..]
  • neurofibromotasis - by anshu chandna - (Wed, Apr 16 2008)
    friends, me and my father have the neurofibro .we are used to this. people look at us very disgust and they do not talk properly. first i was shy of this as this was on my face,arms,chest and back. [more..]
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