Living with NeurofibromatosisThis section is a place to share stories about Living with Neurofibromatosis Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Neurofibromatosis 1 
Hi my name is Tina and I have neurofibromatosis I was diagnosed when I was a young child. I have had multiple surgeries and looking at another here not too far away. I have a VP shunt for hydrocephalus, I also have thyroid tumors that are causing major problems as we speak. I would love to visit with others that have this disorder/disease. One positive thing is I am going to school to be a nurse.
February 2008
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