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Living with Neurofibromatosis

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NF 1


by: Gopi on Mon, Jan 28 2008

I am a unmarried man aged 33 yrs, having NF1 [neurofibromatosis] from my 10th year of age. The noddules are growing day by day in size and also in numbers, disfiguring of face. I am unable to marry as if feared of the hereditary aspect.

Comment on this

Comments
  1. Tue, Feb 12 2008
    Hi! I won't you to know that i have nf1 and i felt the same way. i am 45 and i never thought i would get married, because i am covered from head to to...Read
  2. Thu, Feb 07 2008
    HI, I AM SO SORRY THAT THIS HAS HAPPENED TO YOU. MY DAUGHTER HAS NF1, AND SHE HAS SUFFERED LOW-SELF ESTEEM. SHE FEELS LIKE SHE WILL NEVER HAVE A SECUR...Read

January 2008

  • NF 1 - by Gopi - (Mon, Jan 28 2008)
    I am a unmarried man aged 33 yrs, having NF1 [neurofibromatosis] from my 10th year of age. The noddules are growing day by day in size and also in numbers, disfiguring of face. [more..]
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