Living with MyopathiesThis section is a place to share stories about Living with Myopathies. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download my son has myopathies 
My story is about my 17 year old son. About 6 months ago he started complaining of his legs being weak and falling down a lot. Since he has gotten worse and can hardly walk now and when he does it is very short distance and he looses his balance easily. We have been to the MD clinic and he has been diagnosed with non specific myopathies with features of type2 atrophy. They are still running more test to help narrow it down. He is now having shortness of breath especially when he walks and trouble sleeping at night. He is now having to take his last semester of school at home because he does not want to go to school in a wheelchair. He is a senior in high school and this has devastated our family up until this point he lived a normal life.
January 2009
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