Living with MyopathiesThis section is a place to share stories about Living with Myopathies. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download undiagnosed conditions my story is my sons. He is 9 and we have been searching for over 2 years to come to a definitive diagnosis for his muscle myopathy. We have been going to a childrens rehabilitation clinic and done a muscle biopsy. I worry about his prognosis. He plays and does all activities that boys his age do. He just is slower and falls alot and sometimes he has bouts of stiffness it seems in his hips. He went to MD summer camp last year and is so excited about doing it again this summer, but MD asscociation called me and said without a “proper MD diagnosis” he will not be able to go to camp this year. Comments
May 2008
|
||||
The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer)
|
