Coping With Myasthenia Gravis

When I was pregnant with my 2nd child is when I first started to notice something was just not right. I would lay my hand down on a table and was not able to lift my fingers. I told my OB/GYN and he sent me to have some tests. He thought I had carpel tunnel. After my first round of tests I was told that I might have ALS How scary!!!

I was about 4-5 months pregnant and thought I was going to die. I was then sent to a neurologist. She also did some tests and thought I had ALS as well. On my next visit my husband and I took our family with us to find out where to go from here. She at that point (after doing more tests) said that I had Myasthenia Gravis. I had never heard of hit. My MG is not typical at all. I have no facial weakness. My only problems are I have weakness of my extremities. I can’t walk on my heels. I get very fatigued walking up steps, holding a hair dryer and brushing my teeth. I was on cellcept for 4 years and have been off of it for 1 year. Again, I am starting to show signs of MG returning. I am not sure about other women but my period really aggravates my MG During that week I can barely function. Also, I have muscle spasms in my feet.

My doc has always said that I do not present with the typical MG. I honestly believe that ALS was my diagnosis but God changed that. I give all the glory to Him.