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Coping With Myasthenia Gravis

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symptoms of myasthenia gravis
by: HS on Wed, Feb 04 2009
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My MG first presented its self to me by a droopy eye lid 9/2008. My other symptoms were slurring of speech,and exhausted feeling tongue.I was first seen by a opthamologist, who sent me to a neurologist. All my blood work was negative for antibiodies, and the diagnosis was made by symptoms only.

I was ordered mestinon, which gave me nausea and diarrhea, so I did not take it as directed. I took it only 1 to two times a day, instead of 3 times as ordered.I have not had any symptoms for approximately 2 months. I am wondering if I have been diagnosed with the wrong thing ! It seems like a really bad thing to label someone with this disease, if its only by guess work that it was diagnosed. Health insurance is expensive enough, without being considered a ” high Risk ” .

If I dont have myasthenia, how does one ever get rid of the label that has been pinned on them ? My other thought is that no one thought to scan my carotid arteries, to see if maybe that was what was causing my symptoms. Any feed back or thoughts would be appreciated. Thank you.
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  1. Sun, Mar 15 2009
    You sound like you have a classic case of MG Did they do all of the bloodwork? Maybe get a 2nd opinion or better yet, go to Mayo Clinic in Rochester...Read

February 2009

  • symptoms of myasthenia gravis - by HS - (Wed, Feb 04 2009)
    My MG first presented its self to me by a droopy eye lid 9/2008. My other symptoms were slurring of speech,and exhausted feeling tongue. [more..]

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