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Coping With Myasthenia Gravis

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Phillip’s story as recorded by his wife, MaryAnn
by: MaryAnn on Fri, Sep 12 2008
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On July 8, 08 Phillip and I were driving back home to Texas from Chicago when a semi truck nearly hit us. My husband managed to avoid a collision. He was naturally furious with the truck driver and told me to phone the number on the semi truck to complain about the driver.

As I handed the cell phone to Phillip, I noticed his right eye nearly closed. I also noticed his right hand shaking violently. The first thing I thought was that Phillip may have had a stroke Eventually his hand quit shaking but his eye remained closed and at times partially closed. He continued driving on home. We waited a week or so before going to the doctor. I think Phillip thought whatever was wrong would magically go away. An MRI indicated that Phillip has several mini strokes….but the doctor was not convinced that this was the reason his eye was closing. The doctor sent him to a specialist. The specialist ordered a test to determine whether Phillip may have Myasthenia Gravis He does.

Neither of us had heard of the disease. Phillip is now taking the prescribed medicine but it doesn’t seem to be helping….perhaps, it is just because he just started taking it…perhaps it is because he is over 60 years old. If anyone out there has had a similar experience or knows of someone that has, please post your comments. Thank you and May God Bless You.


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  1. Tue, Oct 28 2008
    Dear Mary Ann, I am a 35 yr.old mother of a 2yr old and recently (6 mo ago) was diagnosed with Ulcerative Colitits ( an auto-immune disease). It has ...Read

September 2008

  • Phillip’s story as recorded by his wife, MaryAnn - by MaryAnn - (Fri, Sep 12 2008)
    On July 8, 08 Phillip and I were driving back home to Texas from Chicago when a semi truck nearly hit us. My husband managed to avoid a collision. He was naturally furious with the truck driver and told me to phone the number on the semi truck to complain about the driver. [more..]
  • My sister was diagnosed with MG - by BP - (Mon, Sep 08 2008)
    My sister went into the ICU on July 31 and had to be placed on a ventilator. They have done 5 plasmapheresis treatments and started her on prednisone and mestinon. [more..]
  • MG a new chapter in my life - by Dale - (Tue, Sep 02 2008)
    I had experienced trouble swallowing and breathing on more than one occasion, but had no idea what was going on. Then in July 08 I had an extreme episode that took me to the emergency room where I stopped breathing and my heart stopped. [more..]
  • MG - I was just very recently diagnosed - by Susie - (Tue, Sep 02 2008)
    I can share Sharon’s story about the couch and not being able to do the things that I have always done. I kept telling everyone something was wrong and I was so tired and extremly weak, all the time. No appetite, nausea and what goes in must come out. [more..]

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