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Coping With Myasthenia Gravis

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MG - I was just very recently diagnosed
by: Susie on Tue, Sep 02 2008
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I can share Sharon’s story about the couch and not being able to do the things that I have always done. I kept telling everyone something was wrong and I was so tired and extremly weak, all the time. No appetite, nausea and what goes in must come out.

My children are 27 and 18, my 18 year old I barely made it to his Graduation, but I would not have missed that for anything. I did buy him a new Eclipse, manly hunter green for graduation, but that took every bit of energy I had, but sometimes (this was before I was diagnosed) I would have to plan things 3-5 days in advance.

I was just diagnosed August 15, 2008. Now they are going for my Thymus gland on Monday, Sept 1, 2008. The CRT scans have been horrible, the 1st one blew a vein and I ended up in ER two times w/t 2 days, not fun. My Dr. has started me on losts of anti-biotics for ulcers and ulcerative coalitice. God Bless
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  1. Sun, Oct 26 2008
    HI, my name is Tina and I am 35 years old and a mother of a 2yr.old girl. I was recently diagnosed with Ulcerative Colitis about 6 months ago...now i...Read

September 2008

  • Phillip’s story as recorded by his wife, MaryAnn - by MaryAnn - (Fri, Sep 12 2008)
    On July 8, 08 Phillip and I were driving back home to Texas from Chicago when a semi truck nearly hit us. My husband managed to avoid a collision. He was naturally furious with the truck driver and told me to phone the number on the semi truck to complain about the driver. [more..]
  • My sister was diagnosed with MG - by BP - (Mon, Sep 08 2008)
    My sister went into the ICU on July 31 and had to be placed on a ventilator. They have done 5 plasmapheresis treatments and started her on prednisone and mestinon. [more..]
  • MG a new chapter in my life - by Dale - (Tue, Sep 02 2008)
    I had experienced trouble swallowing and breathing on more than one occasion, but had no idea what was going on. Then in July 08 I had an extreme episode that took me to the emergency room where I stopped breathing and my heart stopped. [more..]
  • MG - I was just very recently diagnosed - by Susie - (Tue, Sep 02 2008)
    I can share Sharon’s story about the couch and not being able to do the things that I have always done. I kept telling everyone something was wrong and I was so tired and extremly weak, all the time. No appetite, nausea and what goes in must come out. [more..]

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