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Coping With Myasthenia Gravis

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Twitching MG
by: Nick G. on Tue, Jul 29 2008
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MG Has changed my life, from being on the go all the time to pottering around the house. My biggest problem i have is people tell me how well i look, they dont understand i am dying inside. this site gives me a chance to tell others and for them to have some understanding how i feel.

I was the life and soul of every party, first to get on the dance floor and the last one off. i was diagnosed with generalized myasthenia gravis in January 2008. I had been to three christmas partys within a week of each other. i had been found by my wife asleep on the toilet in the early hours of the morning on the 18th dec 2007. i could only open one eye, thought this may be one of those once in a life time hangovers.

Over the next few days each eye would take it in turn to droop. double vision. it was then i noticed i was sluring my words towards the end of the day, also i started chocking on my evening meal. i went to see a very good friend of mine who just happens to be an eye surgon. He advised me to get to my GP as soon as possible that same day, which i did. he made a few phone calls he gave me the news that it could be MG

I knew what MG was because i work in the medical proffession. i had the blood test, I had the appointment to see the neurologist and it was confirmed that i had MG. I so lucky my neurologist is Oxford based, i have a MG nurse that i can call if i have any problems. i have had so much time off of work as i had both hips replaced last year (may 07) so i was just getting back to work when all this happened.

i now worry about paying the mortgage and not being able to carry on in my presant employment. my sleep pattern has changed i only sleep for about four hours as my muscles start to twitch. that makes me week for the rest of the day. its hard to explain but i feel usless and not worthy of existence. now that may seem harsh to those that dont have MG but i guess it would be like a footballer having both of his feet removed.

empty is what i feel, will my doctor provide me with a sick cert ?. do my family and friend realy understand what i am feeling. I have been booked to see a counciller maybe i can then why i feel this way. sorry about the spelling.


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July 2008

  • MG with muSk positive - by Kathy - (Wed, Jul 30 2008)
    I read Nick’s story tonight and know exactly what he means about how friends look at you and think you look well. My 4 closest friends saw me in ICU for 17 days after my first “Crisis” and they will never forget how close I was to death. [more..]
  • Twitching MG - by Nick G. - (Tue, Jul 29 2008)
    MG Has changed my life, from being on the go all the time to pottering around the house. My biggest problem i have is people tell me how well i look, they dont understand i am dying inside. this site gives me a chance to tell others and for them to have some understanding how i feel. [more..]
  • double vision/drooping eyelid - by priscilla - (Wed, Jul 23 2008)
    I had double vision when I was 14 yrs old and my eyelid started to droop after I had children. [more..]
  • Tentably diagnosed with possible MG - by Lalo - (Thu, Jul 10 2008)
    I went to see my physician with a stubburn asthma proble and was givem a steroid injection and a prescription fn antibiotic that I was to take for seven days, and stopped on the 5th day because I could not walk and had severe pain on both calfs. [more..]

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