Healthcommunities.com, Doctors Helping People Online for Over 10 years Healthcommunities.com
Home Search SiteMap Contact Us Forum Store Physician Board

Coping With Myasthenia Gravis

This section is a place to share stories about Coping With Myasthenia Gravis

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

You may also Help others by sharing your story.

To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.


My Father inlaw’s stuggle


by: Jan on Tue, Jun 03 2008

My father in-law was dx. with MG 10 yrs. ago. It began in the eyes only with occasional arm weakness. Symtoms have been managed with varying dosages of prednizone. Increased dosage as eyes worsened. As of 1 month ago he caught a cold, then progressivly worsened with increased weakness. First overall increase in fatigue, difficulty swallowing, inability to hold head up, to eventual inability to breath. Having worked in Physical Therapy for the past 22yrs. I have never seen such quick deteriation of the nervous system. Within one day of being admitted to the hospital for choking, the following day transferred to ICU and put on a ventilator. The tansfusion rx. he was beginning several days back, didn’t amount to a whole lot of change. He was so hopeful that things would turn around following the treatments, to replace the blood platelets.Today is the 4th day on the vent. and a feeding tube was going to be inserted. I’m at a loss as to the prognosis. Do people turn around and begin to breath on there own??? Does this disease reverse itself. Unlike M.S., Musculer Dys., paralysis and other neuro conditions ther is no reversal. Has anyone seen someone come off the vent. from such dire straits???? Yes, I do have my faith, and know that with God all things are possible. So, as I support my husband as he deals with the shock, of having a dad be incapacitated, I’m trying to grasp the nature of this disease. Any similar experiences??? God Bless, Jan

Comment on this

Comments
  1. Fri, Jun 06 2008
    Hi Jan, Yes keep the faith. There is great hope that he will come out of this just fine. What your fatherinlaw is experiencing now is called MG Cris...Read

June 2008

  • Myasthenia Gravis? - by DR. ASAD - (Fri, Jun 13 2008)
    My name is Dr. Asad Qamar from Karachi Pakistan. I am doctor and for the last 6-7 years, I am having ptosis on my right eye along with diplopia and sometimes headache. [more..]
  • Antibody negative Myasthenia Gravis with severe neck weakness and lowered head - by A.S. - (Mon, Jun 09 2008)
    I have MG and can no longer hold up my head. The disease developed very quickly. One month I was functioning normally, and the next, my world had been turned upside down. [more..]
  • My Father inlaw’s stuggle - by Jan - (Tue, Jun 03 2008)
    My father in-law was dx. with MG 10 yrs. ago. It began in the eyes only with occasional arm weakness. Symtoms have been managed with varying dosages of prednizone. [more..]
Archives:
  • 2008 January March April May June July August September
  • 2007 April May June July August September October November

  • The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer)



    Home