Coping With Myasthenia GravisThis section is a place to share stories about Coping With Myasthenia Gravis Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download My Father inlaw’s stuggle My father in-law was dx. with MG 10 yrs. ago. It began in the eyes only with occasional arm weakness. Symtoms have been managed with varying dosages of prednizone. Increased dosage as eyes worsened. As of 1 month ago he caught a cold, then progressivly worsened with increased weakness. First overall increase in fatigue, difficulty swallowing, inability to hold head up, to eventual inability to breath. Having worked in Physical Therapy for the past 22yrs. I have never seen such quick deteriation of the nervous system. Within one day of being admitted to the hospital for choking, the following day transferred to ICU and put on a ventilator. The tansfusion rx. he was beginning several days back, didn’t amount to a whole lot of change. He was so hopeful that things would turn around following the treatments, to replace the blood platelets.Today is the 4th day on the vent. and a feeding tube was going to be inserted. I’m at a loss as to the prognosis. Do people turn around and begin to breath on there own??? Does this disease reverse itself. Unlike M.S., Musculer Dys., paralysis and other neuro conditions ther is no reversal. Has anyone seen someone come off the vent. from such dire straits???? Yes, I do have my faith, and know that with God all things are possible. So, as I support my husband as he deals with the shock, of having a dad be incapacitated, I’m trying to grasp the nature of this disease. Any similar experiences??? God Bless, Jan Comments
June 2008
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