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Coping With Myasthenia Gravis

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my experiance with MG


by: yasmine on Mon, May 19 2008

Last year, I think some time between September and October I lost one of my best friends. That affected me allot. I was under stress for couple of months, was very sad. Couldn’t express my feelings to any one in the world. In addition, I had a bunch of tasks at work needed to be finished, was hardly concentrating!
By the beginning of December, I had pain in my throat, and my parents were in a trip! I felt very weak, just wanted to stay in bed. I said to my self, I need some time off! I went away for couple of days, but it didn’t work! I was still feeling tired and sick.

My left eye led drooped in the 9th of dec 07. I said to my self, I might have caught cold or something, and I ignored it.
By Christmas time, couldn’t control my facial expressions, I looked lazy! Even one of my friends was joking and saying in one morning: hey Girl! You look drunk! Were have you been last night! Though I don’t drink!

After the new years, specifically the 3rd of Jan had troubles in breathing, moving my shoulders, and sever weakness in my lower extremities, and went to see a neurologist!

In the 6th of Jan, I was admitted to the medical ICU, under observation, and I was diagnosed with mystinia gravis.
For a week, I was very weak, underwent different diagnostic tests, and I was in extreme denial! I cant believe till now that I am sick!
For two months, was very weak, took IVIG, and all medications needed to restore my strength.
I swear, I felt empty! As I was born again, with a name of mystinia! I cant remember my previous 27 years, all I know that I am a new person.
I have gained weight because of steroid therapy! My image is changed!
Once I get a bit of a flu I stay in bed for days.
I cry every night for God, to give strength to confront the next coming day. And try to remember who I am!
It is May 08, five months had pass since my diagnosis!
I went back to my work, I see my friends, but diffidently I am a new person!
What I want to say that: don’t put your self under stress, what ever the crises is! Once you feel pain, just go and check your self! And remember what ever God sends you it is a bless! And always have faith on him.
I am still sad, weak, but I know that one day, very soon, I will be okay.
I pray ever night: Please God give me the strength to accept the things I cant change, the courage to change the things I can, and the wisdom to know the difference. God Bless

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May 2008

  • my experiance with MG - by yasmine - (Mon, May 19 2008)
    Last year, I think some time between September and October I lost one of my best friends. That affected me allot. I was under stress for couple of months, was very sad. [more..]
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