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Coping With Myasthenia Gravis

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MYASTHENIA GRAVIS


by: Merrill on Wed, Apr 16 2008

I was 20 years old when I starting realizing that my body was changing. I was having a lot of trouble with my eyes, then my arms and legs were very weak and the problems kept coming. I decided to go to the eye doctor and she said my vision was fine. so let it go. days would pass and I couldn’t hold a brush in my hand or put my hair up. I then started falling a lot more because I had no feeling in my legs. so I started to worry.

Well in September 2005, my husband and I had a baby. She was 2 months old and I was holding her, had my husband not been there I would have dropped her. my arms had no feeling and I thought I was holding her but I wasn’t. the next day I scheduled an appointment with my regular doctor. He did some body tests on me and knew something was wrong. I then did 2 MRI’s and I had symptoms of MS and Lugarates… scary. My next appointment wasn’t until the following week and my husband and I went to walmart on a Monday night and I fell.

That night they admitted me to Lourdes Hospital in Lafayette and the Tuesday morning I did a spinal tap. nothing was there. I then did a cat scan still nothing. The thursday morning they called a neuroligist in to see me and it took him five minutes to diagnose me. He could tell by my eyes and the Friday morning November 11, 2005 I had the surgery. They were going to go through my throat but said it was to dangerous because they didn’t want to knick a vessel, so they opened me up completely, broke my breast bone, collapsed my lungs and removed my thymus gland. It has been 2 years since the surgery and I am in great health today. I was very blessed.

Comment on this

Comments
  1. Sun, May 25 2008
    I as well have alot of neck pain. I don't mind the droopy eyelid but the double vision is hard to deal with. Trying to function everyday and caring...Read
  2. Sat, May 24 2008
    Welcome to the forum...I hope you get as much out of "chatting" on it as I do. When I'm having double vision and/or droopy eyelids, my neck...Read
  3. Fri, May 23 2008
    I was diagnosed with Ocular MG about 3 months ago. I am currently taking 240mg of Mestinon. Currently the meds are not working and I have severe do...Read
  4. Wed, May 21 2008
    hey. hope u r ok today. i did visit the surgen today! he was explaining about the surgery in a very delicate way. i felt a bit comfy, but still feel s...Read
  5. Mon, May 19 2008
    Ladyyaso, Welcome to the forum. I understand being sad...fortunately today is not one of those days for me. Some days it feels hopeless, but I alwa...Read

April 2008

  • My Struggle with Myasthenia Gravis - by chantrell - (Fri, Apr 18 2008)
    In 1995 I was diagnosed with Myasthenia Gravis I was 15 years old. It all started when my tongue started feeling funny earlier in 1995. [more..]
  • MYASTHENIA GRAVIS - by Merrill - (Wed, Apr 16 2008)
    I was 20 years old when I starting realizing that my body was changing. I was having a lot of trouble with my eyes, then my arms and legs were very weak and the problems kept coming. [more..]
  • 14 years of Myasthenia Gravis - by Barbie - (Thu, Apr 10 2008)
    I think the first signs of mg was extreme weakness and sleepiness. I was pregnant with my forth child and about a month away from giving birth. [more..]
  • mg - by Sandra - (Fri, Apr 04 2008)
    For 2 years I have struggled with severe weakness. I was found with a thymoma in Nov 2007. I went to the cleveland clinic Jan 2008 to get help and to find out what was wrong. [more..]
  • trying to get better - by Jack's daughter - (Tue, Apr 01 2008)
    My dad is 65 and until this Christmas he was the most active man i had ever seen, then he got sick. Dad’s eye began drooping and he got double vision the day after christmas. Mom thought maybe he had a stroke in his eye, so she made him a doctors appointment for the next day. the doctor did lots of blood test and sent him for an MRI [more..]
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