Coping With Myasthenia Gravis

I think the first signs of mg was extreme weakness and sleepiness. I was pregnant with my forth child and about a month away from giving birth. Everyone who knew me started to notice a change in my appearance,especially in my face. I did not see it at the time. I rule it out as pregnancy was just making me fatigue. I did have somewhat of a change in my ability to do daily task. I notice going up stairs my legs would feel like they were going to give out on me. I couldn’t use a knife for cutting my food. Combing my daughters hair became harder to do. I simply ignore the signs that something was wrong. finally went into labor and had a very long delivery, after pushing for a very long time she was born.

I previously had sign to have my tubes ties( means no more kids) prepared for the surgery the following morning extremely tired. I was wheel into surgery room and given general anestetics. After that my life would completely change upon. I was paralyzed all over my body. I could not breathe at all. I tried moving but I just couldn’t , so I thought that I was going to die. but one of the staff in surgery notice something was wrong and he quickly started to bag me,so that I could breathe. I awaken in ICU frighten and so weak I could hardly hold my newborn baby. My DX was a seizers. I was sent home with medication for seizers that I did not have. Thinking that I would get better I assume my role as a mother of 4 kids, not even being able to walk without feeling breathless. my husband notice that I wasn’t getting better, so he rush me to the ER. they admitted me to the hospital they call in a nerologist and he dx me with mg

Life for me since then has been many accounts of the ICU, a fifth child ,weeks in the hospital and surgeries/breathing machines . Through trial and error I have learn how to live with mg. 1. stay away from people who are ill. 2. always wash your hands. 3. eat as healthy as possible ,less meat if possible. exercise daily ,a stationary bike is good. 4. stress free life is not a option,its a must. 5. Pray for strength and courage to God. As for me I am trying to live as normal as possible. I always think that things could always be worst.