Coping With Myasthenia Gravis

March 2008

• 18 and full of life - by Jess - (Thu, Mar 20 2008)
  I was diagnosed with MG in February 2007. I was 17 years old. As a younger teenager I had always had some weakness but doctors told me it was because I was growing and was put on iron tablets more than once. [more..]
• the unknown disease - by deedee - (Wed, Mar 19 2008)
  Why do most people,including doctors suddenly become defensive to the word MG? When I try to explain it,people act like I am crazy or because they haven’t heard of it then it must not exist. [more..]
• My Story - by Sarah - (Wed, Mar 12 2008)
  I initially had leg weakness off and on, nothing I was alarmed about. January 2004, 33 years old, I started having double vision, so I went to the eye doctor. Since then, I’ve had to wear glasses with prism lenses, so my eyes don’t fatigue as quickly. [more..]
• Myasthenic Falls at Officers feet … - by MaryAnn - (Sun, Mar 02 2008)
  (I had been gradually worsening due to stress …. felt extreme weakness and had fallen)…. It terrifies me to live in a world where I may fall, shake, be extremely weak, unable to speak, swallow, have double vision, or worse … all because of my disease, Myasthenia Gravis and though I explain it, my symptoms may be perceived as “crazy” or “drunk” and I may be denied care. Anyone with a rare disability could die as a result of such ignorance! [more..]