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Coping With Myasthenia Gravis

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Related to Myasthenia Gravis
by: J. Weiss on Mon, Jan 07 2008
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I had first experienced leg weakness. Couldn’t understand it. Didn’t know if doctors would believe me as I had no pain. I finally gave in and was quickly sent to a neurologist who at first diagnosed me with MG but Mestinon wasn’t the total answer as to take enough to help me walk would cause diarrhea and cramps. After sending my blood work to a specialized lab, it came back with Lambert-Eaton Myasthenic Syndrome, which involves the same neurotransmitter as MG I’m now on an investigational drug called 3,4-diaminopyridine and it works wonders!!
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January 2008

  • Discovering M G - by L. Clark - (Tue, Jan 22 2008)
    About 2 years ago, I started falling and losing use of my legs. We traveled over 2,000 miles hunting for an answer before I found a wonderful Neurologist that identiied it immediately. [more..]
  • My life Before and After Myasthenia Gravis - by Kandis - (Wed, Jan 16 2008)
    I was diagnosed with MG when I was twelve years old. I had everything that any kid could ever want. Everything seem to be perfect in my life. Until…. one day when I was playing basketball and I just fell. [more..]
  • YEARS OF MG - by JACKIE - (Wed, Jan 09 2008)
    I AM 52 YEARS OLD. I WAS DIAGNOSED WITH MG WHEN I WAS 17. I HAVE BEEN IN REMISSION, IN CRISIS AND NOW BACK IN SMI-REMISSION. [more..]
  • Related to Myasthenia Gravis - by J. Weiss - (Mon, Jan 07 2008)
    I had first experienced leg weakness. Couldn’t understand it. Didn’t know if doctors would believe me as I had no pain. [more..]

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