Coping With Myasthenia Gravis

For the past 4+ years I have been seeking medical advice for blurred vision, choking when eating, arm and leg weakness, and heat making me feel awful. I was finally diagnosed with MG [myasthenia gravis] 3 weeks ago by a wonderful neurologist. Prior to see him, I was sent to all kinds of specialists, and none of them actually seemed to believe me when I explained what was going on.

In January of 2007 my condition became so bad that I had to go on medical leave from my job. I used the FMLA for 12 weeks. Then I was informed that I no longer had a job but I did have extended benifits through the middle of July. I have filed for SS disability benefits and have gotten nowhere yet.

The medications I am on have helped with the extreme pain in my arms and legs so atleast I don’t want to hit my head on the wall all day. But the fatigue and weakness gets so bad that I curl up in a fetal position and just try to sleep. This goes on for days at a time.

Since I am so new with this diagnosis, can anyone tell me if these episodes will continue? I know I have had these symptoms for years without a diagnosis…did that wait damage me permanently?