Healthcommunities.com
Home Search SiteMap Forum Store Physician Board

Coping With Multisystem Atrophy

This section is a place to share stories about Coping With Multisystem Atrophy.

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

You may also Help others by sharing your story.

To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.


My Father and MSA
by: dhp on Mon, Jan 12 2009
Facebook Twitter

My father was diagnosed with MSA in the summer of 2007. In the beginning, no one could really tell us what this disease is all about. He had Parkinson’s-like symptoms (we now know it to be ataxia or severe imbalance) and he was prescribed levodopa.

His symptoms are cerebellar ataxia, slurred speech, and occasional incontinence. His outlook is not promising but he keeps plugging along. He does some physical therapy and yoga with a teacher three times a week which I believe is quite helpful. The medication he takes does have side effects but there does not seem to be any solution. I met with his neurologist in December 2008 and he confirmed the condition and it’s outlook to me. The prognosis is bleak and my father has tried some “alternative herbal” medicine with no help whatsoever.

I do not know what else to do except for following the doctor’s prescribed medicine and wait. It seems fatalistic. We had his bathroom reconfigured by putting in a shower seat and some handles so that his risk of falling in the bathroom is minimized. The last thing we need now is a broken hip. I wish there was something else we could do.


Facebook Twitter

Comment on this

Comments
  1. Wed, Aug 19 2009
    I feel like I am joining a new club. After 2+ years of thinking my Dad had Parkinsons, and then after extensive doctor consultations, rehab and visits...Read
  2. Sat, Aug 01 2009
    Wish I could give you some positive advice.I really feel for your Mum as my husband too has MSA. Tell her to take all the help she can or she will &q...Read
  3. Sun, Feb 22 2009
    Thanks for all the info. My Dad has a walker as well. We had the HomeCare people over to look at all his equipment and found that at 6' 3" the wa...Read
  4. Sat, Feb 21 2009
    To Janishane: I am sorry to hear about your father. From the symptoms you described, it seems that your father may have low blood pressure (or ortho...Read
  5. Mon, Feb 09 2009
    I too have a Dad with MSA. It has been many years of doctors telling us that it's Lupus, then it's Parkinsons, then its Polymialga Rhuematica, and on ...Read

January 2009

  • My Father and MSA - by dhp - (Mon, Jan 12 2009)
    My father was diagnosed with MSA in the summer of 2007. In the beginning, no one could really tell us what this disease is all about. He had Parkinson’s-like symptoms (we now know it to be ataxia or severe imbalance) and he was prescribed levodopa. [more..]

Archives:

  • 2009 January May June July August September October
  • 2008 April May June July September October
  • 2007 July August September December
  • The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer)