Coping With Multisystem AtrophyThis section is a place to share stories about Coping With Multisystem Atrophy. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download My Father and MSA My father was diagnosed with MSA in the summer of 2007. In the beginning, no one could really tell us what this disease is all about. He had Parkinson’s-like symptoms (we now know it to be ataxia or severe imbalance) and he was prescribed levodopa. His symptoms are cerebellar ataxia, slurred speech, and occasional incontinence. His outlook is not promising but he keeps plugging along. He does some physical therapy and yoga with a teacher three times a week which I believe is quite helpful. The medication he takes does have side effects but there does not seem to be any solution. I met with his neurologist in December 2008 and he confirmed the condition and it’s outlook to me. The prognosis is bleak and my father has tried some “alternative herbal” medicine with no help whatsoever. I do not know what else to do except for following the doctor’s prescribed medicine and wait. It seems fatalistic. We had his bathroom reconfigured by putting in a shower seat and some handles so that his risk of falling in the bathroom is minimized. The last thing we need now is a broken hip. I wish there was something else we could do. Comments
January 2009
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