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Coping With Multisystem Atrophy

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My Mum’s MSA diseas
by: Peter on Mon, May 19 2008
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Hello, my Mum is 67 of age and a dieseas started 6 years ago. It took german Doctors and Hospitals 5 years to find out what she really has. They first thought it might be a Lupus than Parkinson and finally MSA. She had several different treatments and therapies incl. a 5 week stay in a Parkinson Hospital. For many years Doctors gave my loved Mum the the feeling that she is pretending or it’s maybe all psychosomatic or just made up to get more attention. In the last 15 years before retirement my Mum worked as nurse for very ill elderly people and now she has to watch her body and vital functions degrading. Before my Mum got the final diagnosis I already decided to leave Germany to live in Australia with my wife and two children (her loved grand children)- as a loving Mum she always said it is ok if I leave. I know there nothing to relief my feeling of guilt. It’s getting more and more difficult to understand my Mum on the phone and I can’t describe how sorry I feel for her.
My Dad is 72 years old and completely healthy and fit - so he takes care of her. I wish everyone who lives with this disease as much will power as my loved Mum has.


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May 2008

  • My Mum’s MSA diseas - by Peter - (Mon, May 19 2008)
    Hello, my Mum is 67 of age and a dieseas started 6 years ago. It took german Doctors and Hospitals 5 years to find out what she really has. They first thought it might be a Lupus than Parkinson and finally MSA. [more..]
  • Not finished….yet!! - by Treesee - (Fri, May 09 2008)
    I was on a trip to Ca. with my husband of many years, and we had to come home. I had suddenly lost control of bladder, bowels, blood problems, bleeding, clotting. [more..]
  • FINDING MSA - by s - (Fri, May 09 2008)
    I have had tremors, breathing problems, gait, sitting/posture problems and basically everything to do with this rare disorder except that which is exclusivie to men, for years. [more..]

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