Coping With Multisystem AtrophyThis section is a place to share stories about Coping With Multisystem Atrophy. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download My Mum’s MSA diseas Hello, my Mum is 67 of age and a dieseas started 6 years ago. It took german Doctors and Hospitals 5 years to find out what she really has. They first thought it might be a Lupus than Parkinson and finally MSA. She had several different treatments and therapies incl. a 5 week stay in a Parkinson Hospital. For many years Doctors gave my loved Mum the the feeling that she is pretending or it’s maybe all psychosomatic or just made up to get more attention. In the last 15 years before retirement my Mum worked as nurse for very ill elderly people and now she has to watch her body and vital functions degrading. Before my Mum got the final diagnosis I already decided to leave Germany to live in Australia with my wife and two children (her loved grand children)- as a loving Mum she always said it is ok if I leave. I know there nothing to relief my feeling of guilt. It’s getting more and more difficult to understand my Mum on the phone and I can’t describe how sorry I feel for her.
May 2008
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