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Coping With Multisystem Atrophy

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FINDING MSA


by: s on Fri, May 09 2008

I have had tremors, breathing problems, gait, sitting/posture problems and basically everything to do with this rare disorder except that which is exclusivie to men, for years. I have been to many doctors of various specialties, had numerous tests, but never was given a correct dx. I think with finding this website and one other, I know now what is wrong with me. I will just have to convince one of my doctors. They already know I have lupus fibromyalgia, mgus and tremors, but they diagnosed the tremors as ‘essential’ and said there was no specific cause and act like it isn’t serious. I have had to live with this awful condition and it is getting so much worse. I feel empathy with any others who have had similar situations.

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May 2008

  • My Mum’s MSA diseas - by Peter - (Mon, May 19 2008)
    Hello, my Mum is 67 of age and a dieseas started 6 years ago. It took german Doctors and Hospitals 5 years to find out what she really has. They first thought it might be a Lupus than Parkinson and finally MSA. [more..]
  • Not finished….yet!! - by Treesee - (Fri, May 09 2008)
    I was on a trip to Ca. with my husband of many years, and we had to come home. I had suddenly lost control of bladder, bowels, blood problems, bleeding, clotting. [more..]
  • FINDING MSA - by s - (Fri, May 09 2008)
    I have had tremors, breathing problems, gait, sitting/posture problems and basically everything to do with this rare disorder except that which is exclusivie to men, for years. [more..]
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