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Sporadic Hyperekplexia


by: Tess on Fri, Jun 15 2007

I’m a 48 yr old woman diagnosed Feb 2007 with Hyperekplexia. Increased allergies past 12 months, body totally intolerant of MSG products, (body thrashing, tremors stiffness, muscle cramps n pain). Now avoiding msg, body very uncomfortable daily with 1-3hr intervals between seizures # Madopar 150mg x 7-8 times daily / 2.5mg Cabaser daily / Rivotril 1- 2mg nocte / Brufen - painful body cramps.
Seeking ideas. No-one knows what to do with me. Stiffness and body jerking increasing.

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Comments
  1. Thu, Oct 11 2007
    I am a Biology Professor with a background in neurophysiology. I can comment on the genetic origins of hyperekplexia. Hyperekplexia, also known as ...Read

June 2007

  • Sporadic Hyperekplexia - by Tess - (Fri, Jun 15 2007)
    I’m a 48 yr old woman diagnosed Feb 2007 with Hyperekplexia. Increased allergies past 12 months, body totally intolerant of MSG products, (body thrashing, tremors stiffness, muscle cramps n pain). [more..]
  • My Lil Ticks - by Richard - (Thu, Jun 07 2007)
    hello everyone and thank our health community for this chance for us to share our horrible disorders. My name is Richard and i suffer from Cervical Dystonia and it is as you may already know a challenge just getting up in the morn. [more..]
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