Healthcommunities.com
Home Search SiteMap Forum Store Physician Board

Living with Movement Disorders

This section is a place to share stories about Living with Movement Disorders.

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

You may also Help others by sharing your story.

To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.


Sporadic Hyperekplexia
by: Tess on Fri, Jun 15 2007
Facebook Twitter

I’m a 48 yr old woman diagnosed Feb 2007 with Hyperekplexia. Increased allergies past 12 months, body totally intolerant of MSG products, (body thrashing, tremors stiffness, muscle cramps n pain). Now avoiding msg, body very uncomfortable daily with 1-3hr intervals between seizures # Madopar 150mg x 7-8 times daily / 2.5mg Cabaser daily / Rivotril 1- 2mg nocte / Brufen - painful body cramps.
Seeking ideas. No-one knows what to do with me. Stiffness and body jerking increasing.


Facebook Twitter

Comment on this

Comments
  1. Thu, Oct 11 2007
    I am a Biology Professor with a background in neurophysiology. I can comment on the genetic origins of hyperekplexia. Hyperekplexia, also known as ...Read

June 2007

  • Sporadic Hyperekplexia - by Tess - (Fri, Jun 15 2007)
    I’m a 48 yr old woman diagnosed Feb 2007 with Hyperekplexia. Increased allergies past 12 months, body totally intolerant of MSG products, (body thrashing, tremors stiffness, muscle cramps n pain). [more..]
  • My Lil Ticks - by Richard - (Thu, Jun 07 2007)
    hello everyone and thank our health community for this chance for us to share our horrible disorders. My name is Richard and i suffer from Cervical Dystonia and it is as you may already know a challenge just getting up in the morn. [more..]

Archives:

  • 2009 January February
  • 2007 April May June September November December
  • The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer)