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Living with Movement Disorders

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Neuromuscular disorder (MERRF).
by: Salvatore on Fri, Apr 20 2007
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Hello Harry, I’m sorry to hear about your sister’s disorder. I don’t no if this may help, but I have a rare Neuromuscular disorder called merrf. (Myoclonus Epileptic with red redged fibers)
I also have limb movement, head jerks, and falls, but now use a walker. What you described seems similar to what people with Myopaties disorder have! But the symptoms usually began at a very young age or young adulthood.
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April 2007

  • shaking and vibrating - by perla - (Mon, Apr 30 2007)
    hi, as everybody might know living with strange diseases is not being easy. Specially when you have to work and live a normal life is challenging, and i said this because you have to confront people and work with them as a team. [more..]
  • My Lill Ticks - by Richard - (Sat, Apr 21 2007)
    Hi my name is Richard and i have C D For ppl not familiar is a type of Dystonia [more..]
  • Neuromuscular disorder (MERRF). - by Salvatore - (Fri, Apr 20 2007)
    Hello Harry, I’m sorry to hear about your sister’s disorder. I don’t no if this may help, but I have a rare Neuromuscular disorder called merrf. (Myoclonus Epileptic with red redged fibers) [more..]
  • Sister’s Undiagnosed neurological movement disorder - by harry - (Sat, Apr 14 2007)
    my sister (70 years old) has a slowly progressing movement disorder which the best neurologysts in australia are unable to diagnose, much less cure. [more..]

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