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Coping With Hydrocephalus

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15 years post-shunt placement
by: mp on Tue, Dec 16 2008
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I am a 55 year-old female who was diagnosed with hydrocephalus in 1993 at age 39. My symptoms included severe headaches with extreme pain in my eyes, morning nausea, confusion, and numbness and tingling of the extremities. After confirmation of hydrocephalus by CT and MRI studies, I received a VP CSF shunt in 12/93.

I was told by my neurosurgeon that my hydrocephalus was most likely congenital and my body began “decompensating” for it due to the aging process. I have had no problems with the shunt during the past 15 years. Upon my last exam by a neurosurgeon, I was told the shunt was working fine and no need to return unless their were problems. I am asking if anyone has had similar experience–diagnosed in mid-life with congenital disease. If so, how were you diagnosed, treated, and what is your current status? Thank you.


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  1. Sun, Jul 26 2009
    Jennifer-- I am so happy to hear that your husband is doing well and has returned to work, sports and other activities. It's also good to know that ...Read
  2. Sun, Jul 26 2009
    Hi.... He is doing really good! Back to work (light duty for now) playing in softball tournaments and beginning to get back to himself! Think the de...Read
  3. Fri, Jul 24 2009
    Jennifer-- How is your husband doing? It's been awhile since we've been in touch and I was just thinking about him. I hope all is well and he has b...Read
  4. Mon, Mar 16 2009
    Ciara-- Good luck with your upcoming procedure. I hope it will provide answers as to why you are not feeling well. It is frustrating when you know ...Read
  5. Mon, Mar 16 2009
    Martha, Thanks for replying to my post. I did have the doctors tap my shunt, and there didn't seem to be any problems. Right now they are thinking ...Read

December 2008

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