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Coping With Hydrocephalus

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My Little Angel
by: Sally V. on Mon, Apr 28 2008
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My daughter Raven was born with severe congenital hydrocephalus. When she was born you could basically say that the size of her head was two footballs glued together due to the large amount of fluid on her brain. She had a shunt placed and maybe a few months after the first shunt was placed she had developed an infection in the shunt tube and a new had to be placed. Along with the fluid build up on her brain she also had a severe seizuere disorder. she also had a kidney disorder parts of her esophogus missing and for a little baby with so many issues she was such a happy child not letting anything put her down and now matter how close she came to dieing she faught to hang in there. She held on for quite a while right up until March 13th 2007 when we woke up that morning and found that she had passed in her sleep from kidney failuere and still to this day I feel that the doctors could have done more for her if they wanted to but iguess they thought it wasnt nessesary cause she was only on medicade and didnt come from a family that had money. If she had come frome a family with monet I do believe that she still would be here cause the doctors would have done their moneys worth to see to it.


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April 2008

  • Hydro - by A - (Wed, Apr 30 2008)
    I am a 32 year old female, I have had 2 shunt revisions back to back, a total of 3 surgreys. [more..]
  • My Little Angel - by Sally V. - (Mon, Apr 28 2008)
    My daughter Raven was born with severe congenital hydrocephalus. When she was born you could basically say that the size of her head was two footballs glued together due to the large amount of fluid on her brain. [more..]

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