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Living with Huntington's Disease

This section is a place to share stories about Living with Huntington's Disease

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HD
by: DS on Mon, Nov 03 2008
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My father has Huntington’s and it has been very hard on my mother, sister and me. His personality is so controlling, it is like living under a dictator. He controlled every aspect of our lives, from who we could talk to, listening to our phone calls, and even opening our mail. He expects perfection from me, and it is so hard because nothing I do seems good enough for him. We had to run away several time because he was abusive. We had to go back every time though because he can not care for himself.

It is so hard to watch him deteriorate before me eyes and to have to care for him after all that he has done to me and my mother and sister. I have a hard time remembering at times that he does love me (he is usually yelling at me or my mother telling us how stupid we are and how we can never do anything right.) Now I am at college, but I still feel like he is controlling my life.

I am scared to be tested because if it comes back positive, I don’t know if I could handle it. I feel so very alone here; all the people who supported me for so long are back in my home state and I have not found a good support system here because no one seems to know what is it like to live with this godawful disease.


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Comments
  1. Mon, Dec 01 2008
    My dad was also diagnosed with Huntington's; I was 13 when he was. It seemed like he progressed pretty quickly. It was really rough on my mom, sister ...Read
  2. Mon, Nov 17 2008
    i read these two stories early, very early, this morning. could'nt sleep again ,worrying about my four beautiful healthy children, and my six beautifu...Read
  3. Sat, Nov 15 2008
    I just recently found out that my husband has HD As you said it is difficult to watch someone go through the changes that are caused by this disease....Read

November 2008

  • HD - by DS - (Mon, Nov 03 2008)
    My father has Huntington’s and it has been very hard on my mother, sister and me. His personality is so controlling, it is like living under a dictator. [more..]

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