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Living with Huntington's Disease

This section is a place to share stories about Living with Huntington's Disease

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Living with the fear of Huntingtons
by: Ginny on Fri, Sep 26 2008
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Hi all,
Do I have Huntingtons? I do not know, I have chosen not to be tested. I am the oldest of 9 children who lost our mother to this disease. 3 of my sisters and one brother have tested positive and now show signs of Huntington’s. 1 sister and 1 brother have tested negative. That leaves just a couple of us that are aware of this disease and have chosen not to know. So far I don’t show any signs. I believe attitude plays the biggest part in coping with this disease for me. I strongly believe that my sisters and brothers who have this disease are the strongest people I know. Even as the disease takes over they still struggle to be the very best they can be. I admire and love them lots. My heart goes out to all of you suffering with this disease. Keep fighting


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September 2008

  • Living with the fear of Huntingtons - by Ginny - (Fri, Sep 26 2008)
    Hi all, Do I have Huntingtons? I do not know, I have chosen not to be tested. I am the oldest of 9 children who lost our mother to this disease. 3 of my sisters and one brother have tested positive and now show signs of Huntington’s. [more..]
  • huntingtons - by ARLIVON - (Tue, Sep 23 2008)
    After trying to commit suicide, I was placed in the hosp. in the mental ward for 72 hrs. it was there I, met a friend whom has become very dear to me, she was placed there to have testing done, the only way she could be admitted to the hosp. with her medicare ins. was thru the mental health section…I noticed her involuntary movements it was hard not to notice it. [more..]
  • world rank powerlifter gets hutingtons [huntington’s] - by john - (Fri, Sep 19 2008)
    hello my name is j ohn my first story was wrote in july 07 on this web page im just giving a little up date ihavent had any delusional outburst as before and have sticking with a high antioxidant diet and doing a light exercise program as well as prayer time everyday [more..]
  • The Gray Area - by J.N. - (Tue, Sep 02 2008)
    It has been two months now since I’ve been given my results of my HD DNA test. The test came back uncertain. 39 repeats. Just teetering on the edge of the cliff. [more..]

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