Healthcommunities.com
Home Search SiteMap Forum Store Physician Board

Living with Huntington's Disease

This section is a place to share stories about Living with Huntington's Disease

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

You may also Help others by sharing your story.

To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.


The Gray Area
by: J.N. on Tue, Sep 02 2008
Facebook Twitter

It has been two months now since I’ve been given my results of my HD DNA test. The test came back uncertain. 39 repeats. Just teetering on the edge of the cliff. I may never develop symptoms or it may happen later in life. I’ve still given my son a 50% chance of inheriting this gene. I am currently symptom free as well as my siblings and my mother. That is what I concentrate on.

Oh I’m not going to lie to you and tell you that I don’t ever have bad moments. It’s not fair to be afraid of the way you were born. It’s not fair that I feel defective. Even on my worst day all I have to do is look at my beautiful child. I don’t think he’s defective so why am I? If this disease comes for me I will fight it with everything that I have. I will not live in the gray anymore. I’m looking towards the light. God bless all of you.


Facebook Twitter

Comment on this

Comments
    There are currently no comments.

September 2008

  • Living with the fear of Huntingtons - by Ginny - (Fri, Sep 26 2008)
    Hi all, Do I have Huntingtons? I do not know, I have chosen not to be tested. I am the oldest of 9 children who lost our mother to this disease. 3 of my sisters and one brother have tested positive and now show signs of Huntington’s. [more..]
  • huntingtons - by ARLIVON - (Tue, Sep 23 2008)
    After trying to commit suicide, I was placed in the hosp. in the mental ward for 72 hrs. it was there I, met a friend whom has become very dear to me, she was placed there to have testing done, the only way she could be admitted to the hosp. with her medicare ins. was thru the mental health section…I noticed her involuntary movements it was hard not to notice it. [more..]
  • world rank powerlifter gets hutingtons [huntington’s] - by john - (Fri, Sep 19 2008)
    hello my name is j ohn my first story was wrote in july 07 on this web page im just giving a little up date ihavent had any delusional outburst as before and have sticking with a high antioxidant diet and doing a light exercise program as well as prayer time everyday [more..]
  • The Gray Area - by J.N. - (Tue, Sep 02 2008)
    It has been two months now since I’ve been given my results of my HD DNA test. The test came back uncertain. 39 repeats. Just teetering on the edge of the cliff. [more..]

Archives:

  • 2009 January February March April May November
  • 2008 January February March April May June July August September October November December
  • 2007 April July August September October November December
  • The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer)