Living with Huntington's Disease

My husband has Hd [Huntington’s Disease]. Life has been a nightmare for my son and myself.My son is very depressed,he is 26 and he turned to drugs in the last year.He is in treatment now,but he is struggleling.I don’t know if it’s HD and he doesn’t want to be tested. I’m trying to get him on SSD or SSI.Drs.don’t seem to understand how distressed I feel.He is my only child, and now I understand why God was not answering my pray for more children.

I’m trying to keep my faith that my son will not have HD but it hurts cuz I’m having a hard time with finances as my son is not able to work right now.This keeps me up at nite. Idon’t know if I’m dealing with one person with HD or two.If my son choses to be tested he feels there would not be to many reasons to go on living. I worry that if I should die there would be no one to care for him.It could be just plain depression that he is going through as my husband is very difficult to live with[bossy, controlling angry].I’ts hard when people tell you it’s not his fault but they don’t know how it is to live like this.

I have tried a support group,but I have to argue my way out of this house just to go to the store.My husband has gone with me to the group but it makes him upset to see the other people worse then himself. I’m hoping there there is some other person out there that may be going through similar problems and may understand what this is like.