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Living with Huntington's Disease

This section is a place to share stories about Living with Huntington's Disease

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25 and have HD
by: Jodie on Mon, Mar 31 2008
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I was nearly 24 when i found out that my Dad is HD positive. It was a masive blow and even worse that myself and my sister both had 50% chance of having it.
We both decided to go for gentic councilling in view of getting the results. I found out just before christmas 07 that i have the gene and I have HD Thank god my sister came back negative
I was lucky that I have a brilliant fiancee who promised me that he will always be there and he has been my rock. I thank my lucky stars that i have him.
Our next mission is to get pregnant because i have this there is a 50% chance that my baby is going to have it.
But i know as long as i have my fiancee by my side and a positive out look everything will be fine.
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March 2008

  • 25 and have HD - by Jodie - (Mon, Mar 31 2008)
    I was nearly 24 when i found out that my Dad is HD positive. It was a masive blow and even worse that myself and my sister both had 50% chance of having it. [more..]
  • Why - by Amanda - (Wed, Mar 05 2008)
    My Grandfather was diagnosed with Huntington’s Disease when I was just a little girl and my Grandmother didn’t know much about the disease, but disclosed the information regarding it. [more..]
  • Living with HD Gene - by KellyLynn - (Wed, Mar 05 2008)
    Hello I found out about Hunningtons disease when my grandmother was put into the nursing home when I was 9. I then heard about it again when I was in High School. Then in college I found out that I was at risk. [more..]
  • I think my friend may have Huntington’s - by BF - (Sat, Mar 01 2008)
    I just found this forum…and I want to say something about a friend of mine and her family’s journey with the disease . I am 52, she is 50. When we were in high school, I remember her father having Huntington’s. [more..]

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