Living with Huntington's Disease

My Grandfather was diagnosed with Huntington’s Disease when I was just a little girl and my Grandmother didn’t know much about the disease, but disclosed the information regarding it. For a long time we all were under the impression that he died of cancer.

Then my Aunt was diagnosed and now my brother was just diagnosed. My father died of different causes before he could ever begin to get symptoms. The more I research the more scared I become and not just for myself but for my brother who is going to endure. And watching him (31) already have some of the symptoms I cry because I know that could be me in a few years (I”m 27) and my little children (2 and 3 years old) could have this horrible genetic curse.

I hope everyday that they bring more funding to stem cell research. I sometimes don’t know what to say to my brother when he gets down because I don’t know what I would want someone to say to me. I ask the question Why alot. Couldn’t it have been something curable or even something with treatment, but it had to be Huntington’s Disease the disease that you have to watch someone slowly progress back to infancy. Why?