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Living with Huntington's Disease

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I think my friend may have Huntington’s


by: BF on Sat, Mar 01 2008

I just found this forum…and I want to say something about a friend of mine and her family’s journey with the disease .

I am 52, she is 50. When we were in high school, I remember her father having Huntington’s.
He was in the advanced stages when I saw him. He could barely walk( he had a shuffling gait and his hands were perpetually clenched into fists.)

His wife took very good care of him. She fed him vitamins and never fried anything he ate.

My friend, Kary(not here real name) told me when her father first started showing symptoms of the disease, he started losing control of his motor functions-and kids would make fun of him,call him a drunk.

We knew then that there was a 50/50 chance that the 7 kids in her family could contract the disease.

As we aged we watched the disease take her oldest sister(she is in a nursing home) the next two sisters have passed 55 and show no signs. The two brothers may both have have it, one is on disability, the other died in a hiking accident? I question the accident part…I think he knew he had it and may have committed suicide. The youngest, a girl, left home and wanders the street as a street person…and the family does not have too much info on her where abouts…other than she is homeless.

This brings me to Kary…Kary says she doe not have Huntington’s…but I think she does. She exhibits jerky tic-like movements and she cannot sit still. She has been in a depression and has left her husband.

Should I ask her?

Huntington’s is the saddest disease…
it takes you in your prime.

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March 2008

  • 25 and have HD - by Jodie - (Mon, Mar 31 2008)
    I was nearly 24 when i found out that my Dad is HD positive. It was a masive blow and even worse that myself and my sister both had 50% chance of having it. [more..]
  • Why - by Amanda - (Wed, Mar 05 2008)
    My Grandfather was diagnosed with Huntington’s Disease when I was just a little girl and my Grandmother didn’t know much about the disease, but disclosed the information regarding it. [more..]
  • Living with HD Gene - by KellyLynn - (Wed, Mar 05 2008)
    Hello I found out about Hunningtons disease when my grandmother was put into the nursing home when I was 9. I then heard about it again when I was in High School. Then in college I found out that I was at risk. [more..]
  • I think my friend may have Huntington’s - by BF - (Sat, Mar 01 2008)
    I just found this forum…and I want to say something about a friend of mine and her family’s journey with the disease . I am 52, she is 50. When we were in high school, I remember her father having Huntington’s. [more..]
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