Living with Huntington's DiseaseThis section is a place to share stories about Living with Huntington's Disease Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download I think my friend may have Huntington’s I just found this forum…and I want to say something about a friend of mine and her family’s journey with the disease . I am 52, she is 50. When we were in high school, I remember her father having Huntington’s. His wife took very good care of him. She fed him vitamins and never fried anything he ate. My friend, Kary(not here real name) told me when her father first started showing symptoms of the disease, he started losing control of his motor functions-and kids would make fun of him,call him a drunk. We knew then that there was a 50/50 chance that the 7 kids in her family could contract the disease. As we aged we watched the disease take her oldest sister(she is in a nursing home) the next two sisters have passed 55 and show no signs. The two brothers may both have have it, one is on disability, the other died in a hiking accident? I question the accident part…I think he knew he had it and may have committed suicide. The youngest, a girl, left home and wanders the street as a street person…and the family does not have too much info on her where abouts…other than she is homeless. This brings me to Kary…Kary says she doe not have Huntington’s…but I think she does. She exhibits jerky tic-like movements and she cannot sit still. She has been in a depression and has left her husband. Should I ask her? Huntington’s is the saddest disease… Comments
March 2008
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