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Living with Huntington's Disease

This section is a place to share stories about Living with Huntington's Disease

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J.HOLLEY
by: JUDY on Wed, Feb 06 2008
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IN 1981 MY GRANDPA DIED OF H.D. HE WENT THREW ALOT. WE DIDN’T KNOW MUCH ABOUT IT BUT WE LEARNED ABOUT IT QUICK. SINCE THEN MY FAMILY HAS LEARNED MORE ABOUT THE DISEASE. MY MOM HAS BEEN DIAGNOSED WITH IT AND HER BROTHER DIED FROM H.D. 2 YEARS AGO. I WONDER WHO’S NEXT.

I’VE ACCEPTED ITS IN OUR FAMILY AND PRAY FOR A CURE . BUT ALL WE CAN DO IS BE STRONG AND PUT A SMILE ON OUR FACE,KEEP UP ON THE STUDIES THATS BEING DONE ON IT AND PRAY FOR STREINGTH, UNDERSTANDING, PATIENCE, AND A CURE. FOR THOSE WHO WILL NOT BE CURED AND COULD DIE OF THE HD PLEASE REMEMBER WHEN WE DIE AND GO TO BE WITH GOD IN HEAVEN, WE ARE WHOLE, WITH NOT SICKNESS, HAPPY WITH ALL THE LOVE EVER. NO SADNESS.
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  1. Mon, Mar 03 2008
    Yes that is all we can do about it is pray. In heaven we will have new bodies and no pain or suffering. We will be in the glorious presence of the Lor...Read

February 2008

  • The Unknown - by Jenny - (Thu, Feb 28 2008)
    My grandmother and one of her sons have died due to complications from Huntington’s. My mother has tested in the gray area whatever that means. This test result has not given us answers, it has pushed us farther into the unknown. Who has it? Who doesn’t? [more..]
  • J.HOLLEY - by JUDY - (Wed, Feb 06 2008)
    IN 1981 MY GRANDPA DIED OF H.D. HE WENT THREW ALOT. WE DIDN’T KNOW MUCH ABOUT IT BUT WE LEARNED ABOUT IT QUICK. SINCE THEN MY FAMILY HAS LEARNED MORE ABOUT THE DISEASE. [more..]

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