Living with Huntington's DiseaseThis section is a place to share stories about Living with Huntington's Disease Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download dont know 
My grandmother was lost to this desease, and one of my aunts is currently kiving with hd During the psat couple of years my mother, who is in her mid 40’s has started to show signs of the desease. For example she has had an increased difficulty in managing her life, wich is something my aunt also experienced. She has had noticable lapses in memory and confusion. Most recently I have noticed that she seems unable to be still. her movement seems uncontrolable and looks similar to my aunt, and grandmothers. Although i am not a doctor and shouldnt presume I am almost resigned to the idea that she is in the early stages of the desease. She has continued to refuse to be tested. I am concerned because if she does have the desease much of the responsibility for her care will fall on my shoulders. Also I myself haave children and I am concerned for our own health and future. Also for my siblings. Mainly I am overwhelmed by the immediate challenged facing our family. In dealing with this. I am not normaly the type of person to post to message boards. but beyond finding testings centers I am unable to find resouces or help in how to proceed. I am lost. where do i start how do i get her seen by a doctor “she does not have health insurance” How can i convince her to see a doctor. If anyone has similar experience or just anything helpfull that they can share with me Please repond to this posting. It would mean the world to me.
January 2008
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