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Living with Huntington's Disease

This section is a place to share stories about Living with Huntington's Disease

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blessed to be alive
by: john on Tue, Nov 13 2007
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omoreceived a depressing phone call from one of my best friends familyonly to be told there father husband went to work that morning and f ell over dead he was 58 years old im 52 he lived in calif where where i met him we were work partners he didnt smoke or drink and became natl powerlifting champion

had a nice family and kids you never would dream of it i moved to austin tx in 97 but kept in touch to tell him my problems w huntingtons and car acc which he would be there to listen and never say anything negative it just wakes me up to realize weress here today andlll can be taken at anytime and ithank god everyday for all the good things thats happend in my life and wish his family all the glory praise god everyday because theres somebody out there right now thats worse off than we are if yall get tired of reading my post just let me know and i will back off from johnxpowerlifter to crippled from car acc. to huntingtons but sti ll glad to be alive


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November 2007

  • response to bruce living with - by xpowerlifter to cripple to hd - (Fri, Nov 16 2007)
    welcome to the web and your responseyou will be blessed for your caretaking of your mother im sad to hear about herdeath she is no longer suffering and is at peace in a greater place. [more..]
  • blessed to be alive - by john - (Tue, Nov 13 2007)
    omoreceived a depressing phone call from one of my best friends familyonly to be told there father husband went to work that morning and f ell over dead he was [more..]
  • living with - by Bruce - (Tue, Nov 13 2007)
    after caring for my mother with hd for 10 years until her death in 2004 I now have hd I live with my younger brother and his family. [more..]
  • comments to mary genna and caregiver - by john - (Thu, Nov 08 2007)
    welcome mary genna and god bless tocaretakers you are special mary im as you are waiting for medicare i was declined for medicaid i have a halfamillion in hostpital bills i will be receiving medicare sept of 08 praise god i have 5 more surgerys that are overdue dealing with chronic [more..]

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