Living with Huntington's DiseaseThis section is a place to share stories about Living with Huntington's Disease Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download The Unending Story My husband knew he had a 50% chance of inheriting the disease from the age of seven. We married at age 35 and he kept the ravages of the disease to himself. I noticed then, 21 years ago that his foot moved most of the time. I also noticed he did not swing his arms when walking, hiking, ect. While working on my Master’s Degree in Counseling, my research led me to information on neurogical disease and a chill went up my spine when I read of tics and inability to move arms when walking. I tried to talk to him about it, but he turned his back to me and didn’t talk. Finally, from a niece who developed HD
young and rapid progression, I was able to learn from a previously estranged sister in law the whole family history. I knew in my mind and heart my husband had inherited the disease. He was becoming depressed and lost three jobs in succession. Now, it is 21 years later since I noticed his foot moving. He is bedridden, incontinent, has pureed food, etc. He cannot walk and his speech is slurred past recognition.
September 2007
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