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Living with Huntington's Disease

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world ranked powerlifter gets huntingtons
by: john on Thu, Jul 26 2007
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i will start living in california where i began working out and started my competing in powerlifting there i excelled owning my own gym, broke state records winning numerous competions, was an elite rating which was the highest rating in powerlifting possible.

anyway being from texas i decided to move back in 1997 when i decided to compete in the texas state championship in 1998 and 1999 both years i won 1st place took best lifter broke the state record s feeling on top of the world i didnt dream of things thatwere about to arise changing job field when i moved to texas to a consruction supervisor made alot of money. in the year 2002 things started changing ibegan being more verbally abusive i would never miss work or workouts ibegan losing things thinking it was other peoples fault becoming parannoid delusional ibegan self medicating and missed work having days couldnt get out bed losing my job.

i started to drink more and any drug icould find i was totally out of control nobody could reason with me my wife and children left because iwould come home being abusive thinking my wife was sneaking people through secret passage ways in our house i would tear the household up they had to leave i was crazy never thinking it was me the strong powerlitr that had control of life it was everybody else. the police were called i took off got trown jail stating i had mental problems i needed checked out the next day iwas releast got cab went to get my car drove home called a locksmith to rekey house and car.

then my sister called said had an appt with a neuro talking about my uncle died a horrible death with huntingtons and our mother had it but was never diagnosed with it because she wouldt get tested. we all knew she had it my sister said its inherited and we have 50 percent chance of getting it me being in denial i said idont have it and its everybody else thats making me this way and that she needs to go get tested . anyway it was march 27 06 icouldnt sleep it 2 am the morning of my sons birthday iwas going to take and drive somwhere being very delusional paranoid and angry ihad no buisness driving. then the next day i came to in the hospital my family was there told me iwas in major headon collision having tubes down my throat iv bags drainage tubes crushed my feet crushed myhips tore my pelvic in half broke my ribs iwas in the hospital for 7 weeks and had 10 surgerys. i exp. death that day and it was the grace of god lived my fammily said the surgeans were giving my last rights and i got angels looking over because most people in my condition dont make it.

i was spared that day that would of been terrible birthday for my son him waking up happybirthday your dads dead. my life was spared only to be told im dying of huntington having them take the test and it came positive they put me on medication my brain is balanced to this date. i take 1 day at a time dont worry about yesterday just think about today because tomorrow may never be here. ineed help because im crippled and im in chronic pain still need hip replacement and shoulder sergury cant drive nomore have lots of depressing days trying to workout now that seems to help.

say lots of prayers im going to beat this disease im not going to let it getme.

god bless you all wanted to share my exp with someone hopefully it will help. somebody


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July 2007

  • world ranked powerlifter gets huntingtons - by john - (Thu, Jul 26 2007)
    i will start living in california where i began working out and started my competing in powerlifting there i excelled owning my own gym, broke state records winning numerous competions, was an elite rating [more..]
  • Living With Spouse with HD - by Frank - (Wed, Jul 25 2007)
    My spouse is 48 years old, and is entering into full-blown HD [Huntington’s Disease] stage. The most difficult thing to deal with as her spouse, is accepting and understanding the tremendous neurological and psychological changes she has (as still is) been through. [more..]
  • You’re Not Alone - by Mrs. MDB - (Sun, Jul 22 2007)
    Didn’t want Debbie’s post to be all by itself. My brother has HD and I am in the process of moving 2500 miles away to be closer to him and to my elderly mother who has been trying to care for him (when she needs care herself for different medical issues). [more..]
  • Living HD Positive - by Lizz - (Fri, Jul 13 2007)
    I am 25 years old. I am married with 3 children. Our three kids are aged 4, almost 2 and the baby was born 5-17-07. I am HD gene positive. When I was young my great uncle was in the late stage of HD. [more..]

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