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Living with Huntington's Disease

This section is a place to share stories about Living with Huntington's Disease

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Living With Spouse with HD


by: Frank on Wed, Jul 25 2007

My spouse is 48 years old, and is entering into full-blown HD [Huntington’s Disease] stage. The most difficult thing to deal with as her spouse, is accepting and understanding the tremendous neurological and psychological changes she has (as still is) been through.

Home-Care providers generally know very little of HD and often don’t know how to deal with the psychological changes she goes through because of the HD. If the spouse of a HD person isn’t careful and seek counseling/family support, they can also fall victim to the mental and physical stress of dealing with the disease.

Comment on this

Comments
  1. Fri, Oct 05 2007
    My fiance (28 yrs old) and I have 5 kids all together, 3 of mine from a previous marriage and his 2 by a previous marriage... We just brought his mom ...Read
  2. Fri, Aug 24 2007
    hi, my spouse also has huntingtons disease. He is now 29 yrs old. He found out when he was twenty four. This past monday we just buried his father f...Read

July 2007

  • world ranked powerlifter gets huntingtons - by john - (Thu, Jul 26 2007)
    i will start living in california where i began working out and started my competing in powerlifting there i excelled owning my own gym, broke state records winning numerous competions, was an elite rating [more..]
  • Living With Spouse with HD - by Frank - (Wed, Jul 25 2007)
    My spouse is 48 years old, and is entering into full-blown HD [Huntington’s Disease] stage. The most difficult thing to deal with as her spouse, is accepting and understanding the tremendous neurological and psychological changes she has (as still is) been through. [more..]
  • You’re Not Alone - by Mrs. MDB - (Sun, Jul 22 2007)
    Didn’t want Debbie’s post to be all by itself. My brother has HD and I am in the process of moving 2500 miles away to be closer to him and to my elderly mother who has been trying to care for him (when she needs care herself for different medical issues). [more..]
  • Living HD Positive - by Lizz - (Fri, Jul 13 2007)
    I am 25 years old. I am married with 3 children. Our three kids are aged 4, almost 2 and the baby was born 5-17-07. I am HD gene positive. When I was young my great uncle was in the late stage of HD. [more..]
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