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Living with Huntington's Disease

This section is a place to share stories about Living with Huntington's Disease

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

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You’re Not Alone


by: Mrs. MDB on Sun, Jul 22 2007

Didn’t want Debbie’s post to be all by itself. My brother has HD and I am in the process of moving 2500 miles away to be closer to him and to my elderly mother who has been trying to care for him (when she needs care herself for different medical issues). He inherited it from his biological father who died of the disease at fifty-something. It’s an ugly, cruel, awful disease; I’m sorry your family has suffered from it. We’re in the fight with you.

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July 2007

  • world ranked powerlifter gets huntingtons - by john - (Thu, Jul 26 2007)
    i will start living in california where i began working out and started my competing in powerlifting there i excelled owning my own gym, broke state records winning numerous competions, was an elite rating [more..]
  • Living With Spouse with HD - by Frank - (Wed, Jul 25 2007)
    My spouse is 48 years old, and is entering into full-blown HD [Huntington’s Disease] stage. The most difficult thing to deal with as her spouse, is accepting and understanding the tremendous neurological and psychological changes she has (as still is) been through. [more..]
  • You’re Not Alone - by Mrs. MDB - (Sun, Jul 22 2007)
    Didn’t want Debbie’s post to be all by itself. My brother has HD and I am in the process of moving 2500 miles away to be closer to him and to my elderly mother who has been trying to care for him (when she needs care herself for different medical issues). [more..]
  • Living HD Positive - by Lizz - (Fri, Jul 13 2007)
    I am 25 years old. I am married with 3 children. Our three kids are aged 4, almost 2 and the baby was born 5-17-07. I am HD gene positive. When I was young my great uncle was in the late stage of HD. [more..]
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