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Living with Guillain-Barre Syndrome

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3 years after Gullian-Barre
by: Susan on Fri, Jun 26 2009
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My Gullian-barre started after I had received a flu shot at work. I had the flu shot every year for years, and never had a side effect.

On Friday, 1/20/2006 I started that evening with pain in my legs. Not muscle spasms, just a throbbing that no pill could ease the pain.

The next day I took myself to the emergency room. I was crying in pain but he told me to call my doctor on Monday and he gave me a prescription for pain.

Monday morning I fell trying to get out of he bed. My legs would no longer hold me up and I could not believe what was happening to me.

The doctor wanted me to go for a leg scan and when I got to the office the staff called the life squad. They thought I had had a stroke

I was very lucky! I had a great doctor who call in a neurologist and I was his second patient he had in all the years he had been a Doctor.

I spent 28 days in the hospital. I learn to walk again, and now I can even smile!

I still have a little palsy on the right side of my face. And I still have a little problem chewing my food and moving around in my mouth. But at least I can now eat and taste my food.

I went for electrical stimulation on my face. But they said that if it did not come back in one year then it would not come back. So I smile a little crooked but life is good.

I hope that you have Great Doctor’s who can get you back on your feet again. This disease can effect anyone at any age, men, women, and children.

Every day you will find that you will feel better. It has been a journey that I wish never to take again.


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June 2009

  • 3 years after Gullian-Barre - by Susan - (Fri, Jun 26 2009)
    My Gullian-barre started after I had received a flu shot at work. I had the flu shot every year for years, and never had a side effect. [more..]
  • Being strong with Guillain-Barre Syndrome - by Kat in Texas - (Mon, Jun 22 2009)
    I was diagnosed with GBS on June 6 in the emergency room from a Lumbar Puncture, after experiencing decreased movement, breathing ability and paralysis in my legs and arms. [more..]
  • Heartbroken Mom - by jan'ell - (Thu, Jun 18 2009)
    On 6/4/09, my 10 year old son was complaining of his legs feeling week. I told him to rest a while and he will feel better in the morning. Over the course of the next few days he was getting worse with back aches, numb toes and fingers, neck aches, just his body ached as a whole. [more..]
  • GBS - The Horror and the Hope - My story - by Marion - (Tue, Jun 16 2009)
    Please note - this is the second post for my story DAY 5. The results of the CAT scan confirmed that there was a slight thickness on my stomach wall, so now they wanted to do an endoscopy - swallow the camera. [more..]
  • GBS - The Horror and The Hope - My Story - by marion - (Mon, Jun 08 2009)
    I am a 63 year old woman, who has always enjoyed good health and always taken care of myself -eat right, exercise regularly, keep my weight down, don’t smoke or drink. And yet I was one of the unlucky ones to get GBS!!!! [more..]
  • The GBS Attack - by KelishA - (Tue, Jun 02 2009)
    I see the same story..I can not tell you actually how happy I am to hear others story about this rare condition. My mother is 56 years old, always a GO, Get it done type of person. About 3 weeks ago, she started complaining about pains in her leg, but again, she’s go-go! So she overlooked it, well as time has progressed, she started walking very clumsy and complaining of the pain worsening. [more..]

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