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Living with Guillain-Barre Syndrome

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Heartbroken Mom
by: jan'ell on Thu, Jun 18 2009
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On 6/4/09, my 10 year old son was complaining of his legs feeling week. I told him to rest a while and he will feel better in the morning. Over the course of the next few days he was getting worse with back aches, numb toes and fingers, neck aches, just his body ached as a whole. He also had headaches. We took him to his pediatrician which he told us to give him milk and soak him in the bath for he was experiencing Growing Pains. As the days went on he got worse and worse and started limping. We took him Urgent Care on Saturday and the doctor referred him to Children Hospital of Los Angeles. The doctor ran a series of tests on him and did a Spinal Tap and right away they had an idea that he had Guillain Barre Syndrome First they had to rule out any other possibilities of any of diseases or infections (tumors, cancer, ect.)

Today is 6/16/09 and my son is still in the hospital being treated for this Syndrome and he is walking with a waddle kind of like a duck. The doctor said that he should be better by the time school starts in September, but the football star will most likely be unable to play his Favorite Sport until next year. I’m am just happy that it is reversible and I just can’t wait for him to get back to his old self again.

If anyone have a similar story or know of anyone that had to recover, could you let me know of the length of time that it will take for my son to get back running around?


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June 2009

  • 3 years after Gullian-Barre - by Susan - (Fri, Jun 26 2009)
    My Gullian-barre started after I had received a flu shot at work. I had the flu shot every year for years, and never had a side effect. [more..]
  • Being strong with Guillain-Barre Syndrome - by Kat in Texas - (Mon, Jun 22 2009)
    I was diagnosed with GBS on June 6 in the emergency room from a Lumbar Puncture, after experiencing decreased movement, breathing ability and paralysis in my legs and arms. [more..]
  • Heartbroken Mom - by jan'ell - (Thu, Jun 18 2009)
    On 6/4/09, my 10 year old son was complaining of his legs feeling week. I told him to rest a while and he will feel better in the morning. Over the course of the next few days he was getting worse with back aches, numb toes and fingers, neck aches, just his body ached as a whole. [more..]
  • GBS - The Horror and the Hope - My story - by Marion - (Tue, Jun 16 2009)
    Please note - this is the second post for my story DAY 5. The results of the CAT scan confirmed that there was a slight thickness on my stomach wall, so now they wanted to do an endoscopy - swallow the camera. [more..]
  • GBS - The Horror and The Hope - My Story - by marion - (Mon, Jun 08 2009)
    I am a 63 year old woman, who has always enjoyed good health and always taken care of myself -eat right, exercise regularly, keep my weight down, don’t smoke or drink. And yet I was one of the unlucky ones to get GBS!!!! [more..]
  • The GBS Attack - by KelishA - (Tue, Jun 02 2009)
    I see the same story..I can not tell you actually how happy I am to hear others story about this rare condition. My mother is 56 years old, always a GO, Get it done type of person. About 3 weeks ago, she started complaining about pains in her leg, but again, she’s go-go! So she overlooked it, well as time has progressed, she started walking very clumsy and complaining of the pain worsening. [more..]

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