Living with Guillain-Barre SyndromeThis section is a place to share stories about Living with Guillain-Barre Syndrome. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Guillian-Barre diagnosis right or wrong One day in Aug 08 I started tripping over nothing and I found myself slurring some words. Next morning when I got up I couldn’t walk unless I marched with my legs and I felt shooting electrical surges from one side of my chest to the other. Went to the ER where they ruled out stroke or heart attack and was referred to a neurologist. Had the nerve conduction test, MRI of brain, ultrasound of heart, several EKG’s tons of blood work, cat scans of spin. I can walk now without holding on to something but I feel like the floor is slipping out from under me all of the time and I lean to the right. I cannot go into any big bright stores as I really feel like I am going to fall. I have never had any pain with this. After seeing three different neurologists I still have no deffinete diagnosis. The ear doctor is the one who said that he thought I had GB. I have had numerous eye and ear exams. My calfs always feel heavy and feel full. It is hard to function like this . If anyone has had any symptoms like this please share them with me. Had several lyme test, lupus and MS and they have all been neg. Not one neurologist has suggested GB just the ear doctor. Comments
May 2009
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