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Guillian-Barre diagnosis right or wrong
by: martik on Thu, May 07 2009
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One day in Aug 08 I started tripping over nothing and I found myself slurring some words. Next morning when I got up I couldn’t walk unless I marched with my legs and I felt shooting electrical surges from one side of my chest to the other. Went to the ER where they ruled out stroke or heart attack and was referred to a neurologist. Had the nerve conduction test, MRI of brain, ultrasound of heart, several EKG’s tons of blood work, cat scans of spin.

I can walk now without holding on to something but I feel like the floor is slipping out from under me all of the time and I lean to the right. I cannot go into any big bright stores as I really feel like I am going to fall. I have never had any pain with this. After seeing three different neurologists I still have no deffinete diagnosis. The ear doctor is the one who said that he thought I had GB. I have had numerous eye and ear exams. My calfs always feel heavy and feel full.

It is hard to function like this . If anyone has had any symptoms like this please share them with me. Had several lyme test, lupus and MS and they have all been neg. Not one neurologist has suggested GB just the ear doctor.


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May 2009

  • GBS left me deppressed - by Rita - (Thu, May 28 2009)
    I Had gbs about - 22 years ago. I Was hospitalised and they did plasmapheresis for 10 days. I Was in icu for long. [more..]
  • My 83 year old Dad and Guillain Barre - by Pam - (Thu, May 28 2009)
    On May 7, my dad was working in the yard. He is a very strong 83 year old who loves any type of outdoor work (e.g. gardening, flowers, mowing grass, etc.). He began having severe shoulder, back, hip and neck pain that he thought was related to too much outdoor work. [more..]
  • My 3 year old and Guillain-Barre Syndrome - by Chandra - (Mon, May 18 2009)
    The only thing I had ever heard about Guillain-Barre Syndrome was in the drug commercials that warn against having certain vaccines if you have had GBS. That changed on April 10, 2009 at 3am. That is the day my 3 year old was diagnosed with GBS [more..]
  • Very Smart Doctor - by Marty - (Fri, May 08 2009)
    One day in April while at work I found myself stomping my feet on the floor while sitting - they felt a little numb. A couple hours later I left work and couldn’t lift my feet up the stairs to the garage and had to take the elevator. [more..]
  • Guillian-Barre diagnosis right or wrong - by martik - (Thu, May 07 2009)
    One day in Aug 08 I started tripping over nothing and I found myself slurring some words. [more..]
  • Lucky!!! - by Traci - (Fri, May 01 2009)
    I am a 41 year old mother of a 17 month old. I started with numbness in my left ring finger and a strange taste in my mouth on a Monday. [more..]

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