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Living with Guillain-Barre Syndrome

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Living after GBS
by: Jim C. on Thu, Apr 30 2009
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It started with a nagging cold and after not being able to walk one morning I was diagnosed with GB in Jan 2006,I was hospitalized for 6 months in which I was given the last rites 3 times,I went on a respirator after 4 days and was transferred to a more acute care hospital in which I was in intensive care for 5 weeks with my eyes sewed shut because I lost all muscle movement.

I started the long road back which eventually took 11 months. I was transferred to Drake Hospital in Cincinnati Ohio which was my savior,there I met a Dr. who guided me back to recovery and gave me hope when some Drs. thought I was going to be a vegetable,so I am here to tell you not to give up on any treatment,there are always new methods on the horizon. I am still living with parts of the GB but I am still walking and talking, I still have weakness in my feet and hands and cannot work any more but I am still living a fairly normal life.

P.S. I was able to walk my daughter down the aisle at her wedding and see my grandson born.
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Comments
  1. Sat, Sep 26 2009
    Hi Jimmy - It is actually quite puzzling - I have the numbness/tingling constantly, it never goes away completely. But some days it seems to flare...Read
  2. Wed, Sep 23 2009
    I'm curious on when you have the numbness in your hands and feet again. Do you feel the numbness come back after you've been sick? It seems as thoug...Read
  3. Fri, May 01 2009
    Hi there, well done for being so positive. I am also recovering from GBS but my Neurologist says I had a mild attack, although I was numb all over ...Read

April 2009

  • re-occurring Guillian Barre (GBS) - by Steve - (Thu, Apr 30 2009)
    I was first diagnosed with GBS when I was 11 years old in 1963 and was one of the first to be diagnosed with the disorder in the U.S. [more..]
  • Living after GBS - by Jim C. - (Thu, Apr 30 2009)
    It started with a nagging cold and after not being able to walk one morning I was diagnosed with GB in Jan 2006,I was hospitalized for 6 months in which I was given the last rites 3 times [more..]
  • no longer on the road - by bruce - (Wed, Apr 22 2009)
    i climbed in to the big truck to start my day. after 2 hours of driving my hands and fingers started to tingle. I thought it was cuz they were tired of holding the steering wheel. then my feet started to do the same. after a 4 hour run i was back at the yard and my back started to hurt. [more..]
  • A Very Long Year - by Lee - (Thu, Apr 16 2009)
    I was 31 years old, getting divorced and by all intents and purposes, I was very happy for myself and my two children. It was August and the kids were staying with their dad until the start of school. Working within the school system, I had the summer off. I awakened on August 4, and was surprised that my hands felt like they were sleeping. [more..]
  • zak - by zubair k. - (Tue, Apr 07 2009)
    Hi sorry to bother you i am in London but my nephew i.e my brother’s son is suffering from GBS [more..]
  • Guillain Barre at age 13 - by Michelle - (Mon, Apr 06 2009)
    My daughter was suddenly struck with Guillain Barre Syndrome 3 weeks ago. [more..]
  • Not a food allergy - by Helen - (Mon, Apr 06 2009)
    I was getting ready to go on vacation to Denver when I woke with itching and tingling on the sole’s of my feet and the palm of my right hand. The more I scratched my feet welts began to appear on my legs so I called my doctor, got an appointment that afternoon. [more..]

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