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Guillain Barre at age 13
by: Michelle on Mon, Apr 06 2009
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My daughter was suddenly struck with Guillain Barre Syndrome 3 weeks ago. She is 13. She was at school and with no warning, she suddenly couldn’t move her lower extremities. She was taken to the ER and after hours going through tests, the doctors could not diagnose her. The doctors sent her home with no diagnosis; they were baffled. Even the neurologist she saw the next day was puzzled. I finally took her to see her pediatrician and she diagnosed Shannon right away. She was hospitalized immediately, had a spinal tap done upon admission, and was on immunoglobin therapy the next morning. Luckily, she did not need to be placed on a respirator. After 5 days of treatment, she was sent home.

She is able to walk now, with the assistance of a walker and physical therapy It’s still painful and she is unable to walk far distances or stand too long. Gone are the days when she could walk the mall all day, run a 5K in 30 minutes, play volleyball, or join cross country. Simple things, like tiptoeing or walking up/down stairs are difficult and painful. She can no longer ride the regular school bus and needs special transportation.

It has been hard for Shannon. She went from being a healthy student athlete to being a student with special needs in one day. The kids at school don’t understand what has happened to her and are sometimes cruel. Her pediatrician, God bless her, remains positive that she will fully recover. Shannon has remained positive throughout this ordeal and is optimistic that she will soon be able to start running 5Ks again.
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Comments
  1. Wed, Apr 22 2009
    Make sure your daughter keeps a positive attitude and continues to work to recover. At times it can be very hard and painful, but it is the only way. ...Read
  2. Wed, Apr 15 2009
    Patience is the key factor with this GBS stuff. I am cronicling my adventure under " do I have a story for you" in this section. perhaps it ...Read
  3. Wed, Apr 15 2009
    I am sure your daughter will recover fully - I am 62 years old and went down with GBS in Mid December 2008, was in hospital for 25 days, then recupera...Read

April 2009

  • re-occurring Guillian Barre (GBS) - by Steve - (Thu, Apr 30 2009)
    I was first diagnosed with GBS when I was 11 years old in 1963 and was one of the first to be diagnosed with the disorder in the U.S. [more..]
  • Living after GBS - by Jim C. - (Thu, Apr 30 2009)
    It started with a nagging cold and after not being able to walk one morning I was diagnosed with GB in Jan 2006,I was hospitalized for 6 months in which I was given the last rites 3 times [more..]
  • no longer on the road - by bruce - (Wed, Apr 22 2009)
    i climbed in to the big truck to start my day. after 2 hours of driving my hands and fingers started to tingle. I thought it was cuz they were tired of holding the steering wheel. then my feet started to do the same. after a 4 hour run i was back at the yard and my back started to hurt. [more..]
  • A Very Long Year - by Lee - (Thu, Apr 16 2009)
    I was 31 years old, getting divorced and by all intents and purposes, I was very happy for myself and my two children. It was August and the kids were staying with their dad until the start of school. Working within the school system, I had the summer off. I awakened on August 4, and was surprised that my hands felt like they were sleeping. [more..]
  • zak - by zubair k. - (Tue, Apr 07 2009)
    Hi sorry to bother you i am in London but my nephew i.e my brother’s son is suffering from GBS [more..]
  • Guillain Barre at age 13 - by Michelle - (Mon, Apr 06 2009)
    My daughter was suddenly struck with Guillain Barre Syndrome 3 weeks ago. [more..]
  • Not a food allergy - by Helen - (Mon, Apr 06 2009)
    I was getting ready to go on vacation to Denver when I woke with itching and tingling on the sole’s of my feet and the palm of my right hand. The more I scratched my feet welts began to appear on my legs so I called my doctor, got an appointment that afternoon. [more..]

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