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Living with Guillain-Barre Syndrome

This section is a place to share stories about Living with Guillain-Barre Syndrome.

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do I have a story, for you
by: gord on Mon, Feb 16 2009
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I’m 65 years old and 1 year ago in april had some tingling in my little toes, being very active i thought it was a pinched nerve, however it got worse so I called my doctor who told me to go to the hospital. once there a doctor diagnosed me with gbs and I was transported to a big hospital. once there the adventure started and within 3 hrs I was paralized from the neck down, for some reason it missed my chest but included my head, arms, torso and legs.

long story short 70 days in hospital in neurology and physio, 11 neurologists 8 physiotherapists and a psychologist later and I am on the upside of grass. I have had an adventure unlike anything I have ever experienced before. from learning to walk , talk, use my hands and body functions all over again including getting over double vision and hearing loss as well as swallowing and as well losing 30 lbs. Each and every day was a challenge and I have total recollection of every minute of my adventure in the hospital and what happened there. I am in the process of chronicling the events and how I handled each situations. I am a lucky man according to all my care givers and from what I have read on these blogs. I am back to about 85% functionalbility of my former self and am progessing upward daily. more to come later
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  1. Fri, Oct 30 2009
    The weekend was just plain nice. I relaxed and enjoyed the company of friends and family, we talked about me coming home and what that would be all a...Read
  2. Fri, Oct 02 2009
    I first met Richa within the first few days when I arrived on Unit 58, She was the Psychologist assigned to me. She was young, bright and very inquisi...Read
  3. Mon, Sep 21 2009
    Friday the 13th started with overcast skies, raining lightly and a wind from the North. Seeing as how I am superstitious I interpreted the day and dat...Read
  4. Mon, Aug 10 2009
    Walking on a flat surface, like in the hallways, is one thing walking on uneven surfaces, such as out side is another. My left ankle was a little weak...Read
  5. Mon, Aug 10 2009
    The weekend of June 7th was perfect for being outside, lots of sunshine and not to hot, I spent my weekend at home either sitting on the deck basking ...Read

February 2009

  • give me a disease i can at least say - by JOHN - (Mon, Feb 16 2009)
    A while back I was visiting relatives and I noticed I was slurring, when I got home I spoke to my daughter and she informed me at 57 yrs old to be careful cause some times ,slurring is a first sign of a stroke [more..]
  • do I have a story, for you - by gord - (Mon, Feb 16 2009)
    I’m 65 years old and 1 year ago in april had some tingling in my little toes, being very active i thought it was a pinched nerve, however it got worse so I called my doctor who told me to go to the hospital. once there a doctor diagnosed me with gbs and I was transported to a big hospital. [more..]
  • Chronic Guillian Barre - by Butch - (Tue, Feb 03 2009)
    I have been battling reoccuring GBS for approximately 10 years. I was 36 when I was first diagnosed. It took several months to recover after receiving my first five day treatment. [more..]

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