Guillain-Barre Syndrome">
Healthcommunities.com
Home Search SiteMap Forum Store Physician Board

Living with Guillain-Barre Syndrome

This section is a place to share stories about Living with Guillain-Barre Syndrome.

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

You may also Help others by sharing your story.

To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.


Chronic Guillian Barre
by: Butch on Tue, Feb 03 2009
Facebook Twitter

I have been battling reoccuring GBS for approximately 10 years. I was 36 when I was first diagnosed. It took several months to recover after receiving my first five day treatment.

Several months after my first treatment, I was back to approximately normal.

A year and half later the symptoms came back (numb and tingling hands and feet and weakness in my legs and arms). My GBS comes on slowly and over a two or three month period. It always starts in the hands and feet and progresses up the legs and arms.

I went through a second treatment and things again improved and I was back to normal activity after several months.

Since then, I have had 6 or 7 relapses. The IVIG treatments still seem to halt the GBS however, the relapses are coming sooner now.

Because the relapses are coming approximately every 4 to 6 months, my Neurologist has me on a monthly infusion of IVIG and a daily dose of Cellcept (immune supressant drug).

I continue to be active and exercise everyday which I believe helps to regain and maintain muscle strength. I have a great doctor and has been very pro-active with my treatment and we are hoping for the best.
Facebook Twitter

Comment on this

Comments
  1. Fri, Feb 13 2009
    If you would like to submit your story to the Living With section please submit it here: http://www.neurologychannel.com/lv/index.shtml...Read
  2. Thu, Feb 12 2009
    I'm 65 years young and 1 year ago in april had some tingling in my little toes, being very active i thought it was a pinched nerve, however it got wor...Read
  3. Tue, Feb 03 2009
    Hi- I was 39 when "attacked" with the crap. I was in a coma for a month, on a ventilator, and awoke completely paralyzed. It was sometime be...Read

February 2009

  • give me a disease i can at least say - by JOHN - (Mon, Feb 16 2009)
    A while back I was visiting relatives and I noticed I was slurring, when I got home I spoke to my daughter and she informed me at 57 yrs old to be careful cause some times ,slurring is a first sign of a stroke [more..]
  • do I have a story, for you - by gord - (Mon, Feb 16 2009)
    I’m 65 years old and 1 year ago in april had some tingling in my little toes, being very active i thought it was a pinched nerve, however it got worse so I called my doctor who told me to go to the hospital. once there a doctor diagnosed me with gbs and I was transported to a big hospital. [more..]
  • Chronic Guillian Barre - by Butch - (Tue, Feb 03 2009)
    I have been battling reoccuring GBS for approximately 10 years. I was 36 when I was first diagnosed. It took several months to recover after receiving my first five day treatment. [more..]

Archives:

  • 2009 January February March April May June July August September October November
  • 2008 January February March April May June July August September October December
  • 2007 April May June July August September October November

    • The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer)
    printer friendly versionprint this email to a friend  email this AddThis Social Bookmark Button