Living with Guillain-Barre SyndromeThis section is a place to share stories about Living with Guillain-Barre Syndrome. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download WHAT WILL HAPPEN NEXT I am a 26 year old who was diagnosed with GBS in September of 08. I was on a tour in Iraq, about to be finished with 3 weeks to go. I remember a week prior I went and got my anthrax and typhoid shot. I woke up one morning and I found it very hard to get out of bed. I then stumbled around for the day, I suddenly felt like my body was shutting down and I thought I was going to die. I then went to go to the ER, on my way to the bus my legs gave out but I was able to get up and walk the rest of the way. I got to the ER and told them everything. They ran an EKG and some other tests and told me nothing was wrong, I then went back to my tent and took a nap..Things progressed quick and eventually I couldnt walk or talk, and using the bathroom was a struggle. I went to the ER again walking like a 2 year old just learning and that was hard. The ER again sent me back to my tent. Then the next morning I couldnt walk at all(my legs were numb). I was then flew to Germany where I was diagnosed from a spinal tap with GBS. I was there for about 1 month. After 2 weeks I was still in the wheelchair, then on the 3rd week I was using a walker, then a cane and by the middle of november I was walking and sent back home. I was good for a while but a month after I came back my legs starting being crazy again, and I saw a doctor and they told me to be patient. So it went away after a week. Now it is January and last week it started again with my legs, today it started getting better again. I am seeing doctors but I keep getting told new stuff, and I can’t seem to get answers….Im lost and always wonder whats next, I am now pending a med board with the Air Force and my career is coming to an end….This is a hard and confusing syndrome. Comments
January 2009
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