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Living with Guillain-Barre Syndrome

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permanent pain after GBS
by: Mike on Tue, Jan 06 2009
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Both my wife (Jackie) and I had GBS in 2000 I only had it mildly,mainly in the legs so never needed treatment,but Jackie went down hill quickly .She was ill at home I called out three doctors over three day,s! two said hypertension the third new straight away as his wife had contracted GBS. Jackie was in hospital for 7 months! I had to download information and pass it on to hospital staff to read as they had no info: on it!!!

At her worst she was paralised form neck down,blind and deaf!! in rehab she had to learn to walk and feed herself. She gradually improved and we moved to Perth in Australia for the heat and to be near family,the first few years she had a spell of falling (3 times} breaking both wrists and ankles!!She,s a stubborn lady and refuses to give in to it and spends hours raising money for the RSPCA but the downside is she is constantly in pain with hands and feet,I massage the hands which gives her some relief,she has tried just about everything for some relief even some rubbish tablets from the USA advertised on a GBS site!! So fight on all you sufferers, the cure might be just around the corner! Happy New Year. Mike.
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Comments
  1. Fri, Aug 21 2009
    I have just been diagnosed with GBS. I have severe pain in my feet which has progressed up my legs and then to my hands and arms. My Nuerologist sai...Read
  2. Fri, Jul 31 2009
    I'm so sorry Jackie is living with such pain after such a terrible time. Just a suggestion - I believe my fibromyalgia was first triggered by my bout ...Read
  3. Wed, Jan 28 2009
    Hi Mike & Jackie- My name is Shawn and I want to thank you for your story. Funny my husband and I went to Australia two years after I was in a com...Read

January 2009

  • GBS/ Jonathan’s story - by Marjorie - (Fri, Jan 30 2009)
    My son,14 years old, went to school on March 10, 2008. During PE he was jogging and he started having shortness of breath along with chest pain The school nurse called and when I went in to pick him up from school, he was unable to walk. [more..]
  • i suffered from gbs at 17 yrs old - by nicky - (Wed, Jan 28 2009)
    It all started with the flu. the doctors thought i had glandular fever the next day i collapsed and couldnt get back up. [more..]
  • Repeat Offender With GBS - by Iris C. - (Mon, Jan 26 2009)
    I have had the misfortune of having GBS not once, but twice in my life. [more..]
  • WHAT WILL HAPPEN NEXT - by DMM - (Wed, Jan 21 2009)
    I am a 26 year old who was diagnosed with GBS in September of 08. [more..]
  • permanent pain after GBS - by Mike - (Tue, Jan 06 2009)
    Both my wife (Jackie) and I had GBS in 2000 I only had it mildly,mainly in the legs so never needed treatment,but Jackie went down hill quickly . [more..]

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