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Living with Guillain-Barre Syndrome

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A Mother’s Heartache
by: C.C on Mon, Dec 15 2008
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My son John Had Gullian Barre back in 1991..yes he did recover we thought.

He and my other son lived together.The other son came down with the flu in 2001 causing John to catch the flu he didn’t recover. He was so fatigued and pain ..all kinds of crazy systoms. He is very depressed because there isn’t any cure..he’s 38 yet feels old and like he’s dying. Sometimes he feels just like he wishes he could go to sleep and not wake up to pain etc.

I listen to the desperate fear in his voice I feel helpless.My heart cries in silence because I don’t want him upset. although he knows I understand his anger he feels so alone in this battle and in a way he is trapped and no way out.I fear he may give up he has struggle longer then I could had ever. I can’t take the pain away.

Would I want to live his life? No!! There should be more help out there for persons with this diease ..instead they get passed around by the very people whose suppose to help..the medical field.
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December 2008

  • A Mother’s Heartache - by C.C - (Mon, Dec 15 2008)
    My son John Had Gullian Barre back in 1991..yes he did recover we thought. [more..]
  • Guillain-Barre and me - by Shawn - (Fri, Dec 05 2008)
    In 2004 I awoke to my husband looking at me with tears in his eyes. I tried to talk, but soon realized I couldn’t. I tried to lift my hand to his face and realized this too was impossible. [more..]
  • GBS - by Gurlal - (Tue, Dec 02 2008)
    My Uncle Mr. Attar Singh is Govt. Contractor in PWD Department. last month he was suffering from fever Dengue. [more..]
  • Mystery Diagnosis - by Rachel - (Tue, Dec 02 2008)
    I have been fighting Guillain Barre for 10 months now. Just 3 weeks ago is when I found out the diagnosis. [more..]

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