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Living with Guillain-Barre Syndrome

This section is a place to share stories about Living with Guillain-Barre Syndrome.

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Donna
by: Donna on Tue, Jul 29 2008
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I contracted Guillian Barre’ May 3, 2008. Spent a week in ICU unit and 3 weeks in Rehab. It is now late July and Thank God I can walk with some difficulty and work right now just part time. I sit alot at my job. My problem seems to be the same as others, numbness in both feet up to the ankle and my hands. Alot of leg weakness It seems to move at times which is what freaks me out.

My new neurologist appt. isn’t until November because the neurologist at the hospital did not have any time for me. Just told me to get on with my life and go to work meanwhile I am taking Neurotin and other pain meds. It is just very frustrating. Has anyone tried the holistic medicine that is on the market? I don’t want to become addicted to pain medicine along with the other problems.


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July 2008

  • Donna - by Donna - (Tue, Jul 29 2008)
    I contracted Guillian Barre’ May 3, 2008. Spent a week in ICU unit and 3 weeks in Rehab. It is now late July and Thank God I can walk with some difficulty and work right now just part time. [more..]
  • GBS - by Jen - (Mon, Jul 28 2008)
    I was diagnosed with GBS 2 days after x-mas. It got to the point where I had Bells palsy of face. [more..]
  • STILL SUFFERING - by Richard - (Mon, Jul 28 2008)
    I decided to tell my story after reading some of the others on here. My name is Richard Ross, I am a Sioux Indian from S.D. and am 47 years old now. I had GBS when I had just turned 18 in 1980 [more..]
  • Guillian-barre - by kathy - (Thu, Jul 24 2008)
    In 1954 I was 6 years old and had contracted GBS. This was something very new to the medical world then, so my treatment was not immediate. [more..]
  • I was a Quad - by Mary K. - (Mon, Jul 21 2008)
    After a successful back surgery I was supposed to be discharged but my foot dropped and I became increasingly weak. My doctor recognized this immediately and organized a team to diagnose and treat. [more..]
  • I SURVIVED…WITH PRAYER - by Tracey - (Thu, Jul 17 2008)
    On, Wednesday 3/5/08 I became ill. I woke up that morning not feeling the best. My feet were tingly and felt numb. I ignored the feeling, thinking that I must have been tired or something. [more..]
  • 27 years with GBS - by Martin - (Tue, Jul 15 2008)
    My name is Martin Sisneros and when I was 19 years old I had a severe case of Guillain Barre Syndrome in August of 1981 (27 years ago) while in Basic Training in the US Army in Fort Leonard wood Missouri. [more..]
  • Guillilan Barre - by MJ - (Thu, Jul 03 2008)
    I have still some residue of this Syndome. I first lost my feelings in my legs 9 yesrs ago. [more..]

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